Identity Crisis: Defining My Womanhood

I vividly remember sitting in the waiting room of the doctor’s office near campus.  My boyfriend (who is now my husband) sat in the chair next to me flipping through a dated Time magazine.  I hoped that I was going to leave with a prescription for what I was hoping was a kidney infection yet in the back of my mind swirled deeper fears – what if I can’t become a mother?

My name was called and I went back to an exam room making a pit stop to pee in a cup to check for infection.  I anxiously waited sitting on the edge of the exam table.  The minutes seemed to last for hours as I stared at the floor (why don’t they ever keep magazines IN the exam rooms?).  Finally the doctor made an appearance.  ”Good news,” she says, “you do not have a kidney or a bladder infection!”  Crap.  Either of those would be easy to fix.

She began asking for more information about my pain.  When it started.  Where it hurt the worst.  Any other symptoms.  The whole 20 questions.  She had my lie down and began to press on my abdomen to look for points of tenderness.  It didn’t take her long before she said the words that would turn out to be life-changing – “I think you have a female problem.  I am going to refer you to see an ob/gyn right away.”

I was 21 at the time.  Not sexually active.  Five hours from home.  Only a few weeks into my final semester of college where I was doing student teaching at a local elementary school teaching music.  This was an appointment that I wasn’t hoping to make for awhile.  Thankfully, they were able to get me in quickly and God had pre-ordained for me to have a wonderful doctor who would prove to be an absolute Godsend in the years to follow.

Within three weeks, surgery was scheduled to confirm a diagnosis of endometriosis.  At that point, the only thing I knew about endo was that it could cause infertility.  Surgery confirmed what we suspected and the search was on to find answers and pain relief.  Over the next few years, we tried treatment after treatment and birth control pill after birth control pill in search for pain management.  I did a 3 month course of Depot Lupron which I wasn’t sure I would survive (or anyone around me).  Honestly I am shocked that it was during that time that my boyfriend became my fiancé and actually agreed to marry me!  Me + Lupron = not pretty.  My body went through changes that it wasn’t meant to at 22.  I was in a medically-induced state of menopause so I had the night sweats and the hot flashes.  The whole 9.  I felt as far away from womanly as possible.  I did not sign on for a second course of treatment.

In May 2005 the wedding bells rang and thankfully I was able to lose the Lupron weight and squeeze into my perfect wedding gown and walk down the aisle.  Something that John and I always knew was that we wanted kids.  Six months laster we began trying to get pregnant.  The months ticked by.  Pain levels rose.  Then there was a second surgery.  More months ticked by.  We began fertility meds.  Pain levels rose.  Then there was there was a third surgery.  Then there were more invasive fertility treatments.  We were out of luck and out of time.  Pain became more than I could bear.

My body had failed me.  The job that I was created to do (in my mind) I could not perform. Wasn’t God’s first commandment after creating Adam & Eve to “be fruitful and multiply?”  Instead of feeling fruitful, I felt rotted and wasted.  What did that make me?

The weight of that question came crashing down the day of my pre-op for my hysterectomy.  Due to scheduling conflicts I had to go alone.  John really wanted to be there but I thought it would be no big deal.  A vial of blood, a pregnancy test, and a stack of papers to sign.  No biggie.  I was alright until we got to the last form.

It was short and to the point.  It read “I understand that this surgery will make me permanently incapable of bearing children.”  The only other thing on the paper was  a line to sign and date.  It was if the weight of the world was on my shoulders.  My eyes burned as I fought back the tears.  My hand began to tremble as I put the pen to the paper.  I drew my hand back.  I wasn’t sure I could actually go through with it.  The words “permanently incapable” rang in my ears.  I tried my best to shake it off and scribbled my name at the bottom of the page and was given my orders of when and where to arrive for surgery.

I remember laying in the hospital bed the morning of surgery wrapped in my prayer shawl terrified of what was to come.  I was surrounded my family and friends so I was holding it together until the nurse came for me.  I lost it.  I remember clinging to John’s neck begging not to go.  That early May morning, I was losing my womanhood.

I mean, what is it that makes you a woman?  A uterus and a pair of ovaries right?  Isn’t that what we are taught in anatomy?  I would still have boobs, albeit lopsided boobs thanks to fertility treatments and the HRT that followed.  But what else?

I was prepared for the physical pain following surgery (well as much as one can be) but I was not prepared for the emotional and spiritual pain.  In the two years since my surgery, I been on a journey to redefine my womanhood…beyond my anatomy.

I have learned that I can be strong yet graceful.  Determined yet gentle.  Edgy yet feminine.  I have learned that being a woman has more to do with my spirit than with my ovaries (or lack thereof).  For too long I have let my endometriosis define my womanhood.

self

image from weheartit.com

Posted in IF, chronic illness, endometriosis, motherhood | Tagged , , , , , , , | 3 Comments

Wednesday Check-in – Down & Dirty Challenge is Over!

Sisterhood of the Shrinking Jeans

I cannot believe that September is here and the Down & Dirty Challenge is over at the Sisterhood!  I definitely did not get the results I wanted and felt that I didn’t make a good team member at all for this challenge.  I have been a little preoccupied to say the least.

I still don’t have answers from my doctor.  She is in conversation with a doctor in Charlotte so hopefully I’ll get my referral soon.  In the meantime, she did give me some painkillers which I really thought would help with sleep but once again I was up half the night (and am now having trouble holding my head up!).

I was really hoping for a better weigh-in today.  I snuck on the scale Monday and was happy to see the numbers but unfortunately that it was not the same number I saw today.  Today’s weigh-in was 136.6.  So I’m down from last week…a little.  Over all I’m down for the challenge (barely) but nowhere near where I wanted to be.

I’ve got 6 1/2 weeks until my birthday and I really wanted to get a new tattoo but will not allow myself to do so until I am at least below 130 so I’m hoping that I can pick up the pace a little bit (and hopefully get pain under control so I can start running again!).

So here are my stats:

Starting weight: 164.4

Challenge Starting Weight: 137.4

Challenge Goal: 132

Last week’s weigh-in: 137
Today’s weigh-in: 136.6
Change: -0.4

Challenge Change: -0.8

Overall Change: -27.8

In other news, I did have 2 articles published this week on other sites!  My post Battle With the Mirror was posted on the Invisible Illness Awareness Week site and I posted my first article as the endometriosis writer for the Fight Like a Girl Club – When the Doctor Says Its Endometriosis!

Posted in Down & Dirty in 30 Challenge, Sisterhood, Wednesday Weigh In, chronic illness, endometriosis, weight loss | Tagged , , , | 5 Comments

Let’s Talk About YOU Tuesday!

PhotobucketIt’s that time again! Let’s talk more about you, shall we?

Here are this week’s 7 questions and don’t forget you have the opportunity to ask me anything!

1- Do you prefer to wear heels or flats?
2- Did you play any sports in high school?
3- Favorite NFL team?
4- What was your favorite Halloween costume from your childhood?
5- Did you take a vacation this summer?
6- Do you fall asleep with the TV on or off?
7- Favorite type of dessert?

Don’t forget to grab the button and link up!


Posted in Let's Talk About YOU Tuesdays, just for fun | Tagged , , | 6 Comments

Monday Medical News: What It Really Means to Have Endo

This really isn’t a news article but a wonderful essay on what it really means to have endometriosis!  I was skeptical at first as the essay is written by a man but his words are compassionate and honest and really shed light on the impact of the disease on daily life!  This essay was written by Andrew Cook and published on Endometriosis Zone.

What It Really Means to Have Endometriosis

Endometriosis - What is it, really? It can be difficult for even the most articulate patient to effectively communicate how devastating endometriosis can be to one’s life, including the ability to function.

Endometriosis by definition is a disease process where the inside lining of the uterus, the endometrium, flows back up inside of the body around the ovaries and bowel where it implants and begins to grow. Another theory states that the disease can form as a result of what is called coelomic metaplasia. Coelomic cells are those formed as a fetus, and metaplasia means one cell-type turns into another cell-type. In other words, beginning in adulthood some of the primitive cells turn into endometriosis.

Some of the information can sound rather dry and therefore fails to convey what it is like for a woman to have this disease and how it truly impacts her family, her career, her sex life, and her ability to function in very basic ways.

In reality, this disease can feel like having tens or even hundreds of excruciatingly painful blisters covering the inside of the pelvis. Infertility and pelvic pain are the two most common symptoms of endometriosis.

For patients who are lucky, pain lasts a couple of days during their period, and in the worst cases the pain is 24/7. The dichotomy between how endometriosis looks (well on the outside) verses how it is experienced (excruciating pain), can cause even well-meaning people to doubt the severity of their pain.

Most women begin to have pain in their teenage years, sometimes even in junior high school. While similar in timing, this pain is completely different than normal menstrual cramps. It is not uncommon for girls with endometriosis to miss a couple of days of school each month from cyclic pain. It tends to exceed the level of pain patients experience after major surgery.

A lack of awareness of this disease can leave these girls without a correct diagnosis and, without support from their physicians. This can lead to a lack of appropriate treatment for the pain, as well as invalidation of the patient’s situation. Her family is then led to believe that psychological issues drive the severity of her pain.

This tragic situation can be compared to being held prisoner and tortured daily by her own body, with no one who fully understands her situation or who can effectively help her.

The symptoms usually progress as she matures into a young woman. Both the severity and duration of the pain typically increase. Initially most days each month are pain-free, but the number slowly decreases until there are a greater number of non-functioning pain days. The unpredictability of the increasing number of pain days makes it challenging to maintain a functional life. It becomes even more difficult to make plans for a future date as she begins to ask: will it be a pain day? If so, she will not be able to follow through on her commitment for the activity.

As a disease, endometriosis can take away many additional aspects of a normal life. Mothers cannot reliably meet the needs of their children when the pain is too severe to function. Wives try to push through the pain to be intimate with their husbands, but eventually it becomes too intense to continue. Grinding fatigue as severe as that experienced with advance cancer is present in most cases. Bloating, moodiness, and bladder and bowel issues are common as well.

Feeling like a vibrant desirable woman goes away. Acting like the loving compassionate woman, mother and partner that she truly is becomes more and more difficult. The stress on family relationships is common and real.

Even at this stage, most women fight the disease, refusing to let it completely take over their life. Yet, in public, most would have no idea of the devastation they are dealing with. Often they get up, put on a brave face and do their best to live a normal life.

The medical definition of endometriosis does not even begin to describe the reality of what it means to have endometriosis. While it can be frustrating if you have a loved one, friend or co-worker who suffers from endometriosis, please remember to treat them with respect and compassion.

pain

image from weheartit.com

Posted in Monday Medical News, endometriosis | Tagged , , | 4 Comments

6 Reasons Why Fall Needs To Hurry Up

1.  Cooler weather!  I love wearing long sleeves & jeans!  I’m not really a fan of jacket weather but may just become one after finding this cute one!

military inspired jacket

Silver Jeans® Military Inspired Jacket

2.  Along with the cooler weather comes the crisp air and brightly colored leaves!

fall leaves

image from weheartit.com

3.  I have always looked forward to candy corn but to my dismay, candy corn is not gluten-free!  Can you believe it?!  The horror!  At least I have hot apple cider to look forward to!

apple cider

4.  Pumpkins pumpkins and more pumpkins!  I love decorating with pumpkins!  I love carving pumpkins!  I love the scent of pumpkin spice (candles, lotion, you name it)!

Abby & Pumpkin

Abby & our pumpkin last halloween!

5. My birthday!  I turn 29 this year and while I never ever thought it would bother me, it totally is!  Next year I’ll be 30!  EEK!

birthday cake

I totally want this cake! Gluten-free of course! image found at weheartit.com

6.  New episodes of NCIS.  Mark Harmon = yes please!  I seem to have a thing for older men…except for my husband…he’s younger than me….shh…don’t tell!

Mark Harmon

What do you love most about fall?

Posted in just for fun | Tagged , , , | 9 Comments

Friday Words of Faith: Conquerors

conquerer

We are more than conquerors through him who loved us. For I am convinced that neither death nor life, neither angels nor demons,d neither the present nor the future, nor any powers, neither height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord. ~ Romans 8:37-39

Posted in Faith, Friday Words of Faith | 2 Comments

My Identity Crisis

When I became a mom last year, I remember everyone telling me that I would no longer be just “Jamee” but instead I would be “Abby’s mom.”  I always laughed about it until one day I got a phone call from my mom.  She asked, “How’s my baby?”  Of course, I responded, “A little sleep deprived but I’m doing ok.”  She then said, “I wasn’t asking about you – I was asking about Abby!”

Reality hit.  What people said was true!  I’m no longer Jamee instead I’m either Mommy or Abby’s Mom.  I have several favorite “mommy blogs” that I read that have posted awesome blogs about this loss of identity that comes with motherhood.  Two of my favorites are written by Katie and Blair.  What I love about these posts is that they talk about the side of motherhood that isn’t often shared.  I think every mom could go on for hours and gush about the joys and blessings of motherhood but often we struggle silently with the challenges that accompany the blessings.

But over the last couple week’s I’ve been thinking – does the same thing not happen with chronic illness?  As we shuffle between doctors’ appointment we often become the “fibro patient” or “endo patient” or maybe even “the patient that has so many things going on that we have absolutely no idea what to do so we’ll just avoid her as long as possible.”  I can’t help but think of the scene in Patch Adams where the students are taking a tour of the hospital and the instructor is telling the students about the patient with diabetes and all of her complications and Patch raises his hand to ask the instructor what her name is.  The doctor looks puzzled but replies “Margery” so Patch says hello to her by name.

How often do we long to be referred to by name?  How many times do we let our identities somehow become our illness?  I love the quote “labels are for jars, not people” but how often do we do it to ourselves?  We exist beyond our diagnosis.  The last couple weeks because of my flare, I have hardly looked beyond my pain.  I have retreated in many ways and become a shell of the woman I long to be.   As I was sitting in bed wrestling with these thoughts, I began to think about how my illness had affected my identity in three ways – as a woman, a wife, and a mother.  How can I move beyond allowing my diagnosis to dictate who I am and who I become?  Maybe you have found yourself asking the same questions.  Over the next couple weeks, I will be posting a series attempting to answer some of these questions.  My husband has even agreed to do a guest post!

Hopefully you will stick around for the series and hopefully we will find healing and encouragement together along the way!

who i am

image from weheartit.com

Posted in Faith, IF, anxiety, celiac, chronic illness, endometriosis, fibromyalgia, motherhood | Tagged , , , , , , , | 4 Comments

Wednesday Check-in: Down & Dirty #4

Sisterhood of the Shrinking Jeans

I’ll be honest.  I knew today’s weigh-in was not going to be pretty.  Why you ask?  Because I let my pain get the best of me and I drowned my sorrows the past week in ice cream (it was definitely not to my benefit to discover that Moose Tracks was gluten-free).  The past few days I have felt defeated and ignored.  I have yet to get a straight answer from my doctor about whether or not I’m going be continue to be treated or will be referred to CMC.  My fibro meds were lost in the mail (so if I ever doubted as to whether or not Savella was doing its job now I know how big of a difference it makes in lowering pain levels!).  And to top it off, I got my notice in the mail reminding me to set up my appointment for my mammogram.  Perfect.

But I came to a decision yesterday afternoon that I was done.  I was done wallowing.  I was done allowing my emotions to control my eating.  I was done allowing the response (or lack thereof) of others to chart my victory or defeat over chronic illness.  While I can’t force a response from my doctor or the postal service to be 100% accurate, I can continue to be an advocate for myself and my health.  In situations like this, it is not the time to lay down in defeat but to stand up and take charge.

So while my apologies go out to my wonderful teammates, the Outrageous Outlaws, over at the Sisterhood for the gain this week, I can also give my promise that I am not giving up and I will see those numbers drop again!  I am a warrior!

So here are my stats:

Starting weight: 164.4

Challenge Starting Weight: 137.4

Challenge Goal: 132

Last week’s weigh-in: 135
Today’s weigh-in: 137
Change: +2

Challenge Change: -1.4

Overall Change: -27.4

So starting today this is my theme song:

Posted in Down & Dirty in 30 Challenge, Savella, Shrinking into Summer, Sisterhood, Wednesday Weigh In, chronic illness, endometriosis, fibromyalgia, weight loss | Tagged , , , , , , | 8 Comments

Let’s Talk About YOU Tuesday

PhotobucketIt’s that time again! Let’s talk more about you, shall we?

Here are this week’s 7 questions and don’t forget you have the opportunity to ask me anything!

1- Are you in introvert or extrovert?
2- Do you prefer to read or write?
3- Do you still live in the city that you were born in?
4- If you could only have 1 TV channel, what would you pick?
5- What shampoo/conditioner do you use?
6- Do you take a daily multivitamin?
7- Recommend a book/resource on faith, health, or infertility (ok so its not really in the form of a question but it works!).

Don’t forget to grab the button and link up!


Posted in just for fun | Tagged , , , | 16 Comments

Monday Medical News: FMS & Tai Chi

Google Alert flooded my inbox with this news!  Might be something worth trying out!

Fibromyalgia? Try Tai Chi

WEDNESDAY, August 18, 2010 (Health.com) — Doctors often recommend exercise for patients with fibromyalgia, but the chronic pain and fatigue associated with the condition can make activities like running and swimming difficult. Tai chi—a slow, meditative martial art—may be an effective alternative, a new study suggests.

Fibromyalgia patients who took tai chi classes twice a week for three months experienced less pain, stiffness, and fatigue than a control group that attended lifestyle education and stretching sessions, according to the study, which was published in the New England Journal of Medicine.

Tai chi involves a series of slow, fluid movements that focus on balance and deep breathing. Although it’s not clear from the study how exactly tai chi might improve fibromyalgia symptoms, both the physical activity and the meditative aspects are likely beneficial, says Chenchen Wang, MD, the lead researcher and an associate professor at the Tufts University School of Medicine, in Boston.

“Some people need the physical improvement; some people need more mental improvement,” she says. “Tai chi can help with both.”

Previous research has shown that tai chi can help relieve the symptoms of arthritis and other pain conditions, but this study is the first controlled trial to examine its effectiveness as a treatment for fibromyalgia, which affects an estimated 10 million Americans.

The study included 66 fibromyalgia patients who were randomly assigned to take one-hour tai chi classes with an experienced teacher or one-hour classes that taught coping skills, pain-management techniques, and stretching. Participants were also asked to practice tai chi or stretch on their own for 20 minutes each day, depending on which group they were in.

After three months, Dr. Wang and her colleagues asked the patients to rate their pain symptoms, physical functioning, fatigue, and mood, all of which were combined on a single scale ranging from 0 to 100, with higher scores indicating more severe symptoms. (The patients completed the same survey before the study began.)

The average score among the tai chi patients dropped from 63 to 35, while the average for the control group dropped by just nine points, from 68 to 59. Three months after the sessions stopped, the scores had remained roughly the same, which suggests that the benefits of the tai chi were lasting, Dr. Wang says.

The results were encouraging, as existing fibromyalgia treatments—including medication, sleep therapy, and aerobic exercise—fail to help many patients. “We need another approach,” says Dr. Wang.

Robert Shmerling, MD, an associate professor at Harvard Medical School and the chief of rheumatology at Beth Israel Deaconess Medical Center, in Boston, says that he often recommends alternative treatments, such as acupuncture and massage, to his fibromyalgia patients, although some of them are skeptical.

“I would certainly put tai chi on the list,” says Dr. Shmerling, who co-wrote an editorial that accompanies the study. “It’s difficult to take something that’s as safe as tai chi and show that it has this dramatic benefit and not be enthusiastic about it.”

The calming style of tai chi used in the study, known as Yang, may be especially effective for fibromyalgia patients, says Kim D. Jones, PhD, an associate professor at the Oregon Health & Science University School of Nursing, in Portland.

“It works more on the parasympathetic nervous system, …the part of the nervous system that helps us feel calm and relaxed,” says Jones, who studies Yang-style tai chi and yoga in fibromyalgia but wasn’t involved in the study.

Jones recommends that fibromyalgia patients find a well-trained instructor rather than trying tai chi on their own. She points out that learning tai chi in a group may have its own therapeutic benefits, by boosting confidence, for instance.

Many community centers offer affordable tai chi classes, but experienced teachers can be expensive and hard to come by. However, if future studies support the benefits of tai chi, insurance companies might start to cover the practice, Dr. Shmerling says.

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Posted in Monday Medical News, fibromyalgia | Tagged , , , | 4 Comments