Making Some Changes & Life Updates With Chronic Illness

If you haven’t noticed, A New Kind of Normal is currently undergoing a minor facelift! I’m working on tweaking the design and layout so thank you in advance for your patience!

While chatting about the changes, I thought I would give you a few life updates with chronic illness. I didn’t plan to disappear after this year’s Blogging for Endometriosis campaign ended but life got a little crazy (even more than usual)! My health really tanked and we’ve had a couple of scares.

While we were on vacation, we went go-cart racing and on one of the family tracks, Abby and I got nailed hard. Thankfully it was on my side of the car so I took the brunt of the hit. It was not a normal bump and crash. We were hit so hard the suspension of the car broke and we were complete sitting ducks. In all, the attendant counted that we were hit by at least five different cars (it was the first one that did the most damage). Needless to say, my body wasn’t happy so I got checked out just to be sure but thankfully Abby wasn’t hurt at all, just shaken up. If the jerk had hit her side of the car, I might have ended up in jail.

On top of that, a few weeks ago I discovered a lump in my right breast. With my family history and my own history of having an abnormal mammogram and having a total hysterectomy at 26, we didn’t want to take any chances so my doctor rushed a mammogram and ultrasound. Thankfully, we got some good news and it was only a cyst so the girls are A-OK! Praise the Lord!

Then, in addition, I have been having even more trouble with nausea, stomach pain, and not being able to keep food down. Gastroparesis has been an issue for some time now but after needing to remove several adenomas during last year’s EGD, my GI wanted to go back in to see what was going on so I had an EGD last Friday. The only thing about EGDs that make me nervous is getting the IV. There is no prep other than not eating or drinking after midnight so the process isn’t quite as anxiety-inducing as a colonoscopy but with my terrible veins, I hold my breath until that IV is in place and then I’m golden. I always warn the nurses and usually they laugh and say they hear it all the time but never have a problem until they go to stick me. Then they believe me. My nurse this time around was amazing. She had to search and search (and search!) for a vein but once she found the pitiful thing, she hit it first try. It wasn’t ideal and it hurt like nobody’s business but it got the job done. Thank God for vein numbing medications! The whole team was amazing, took great care of me, and the procedure went smoothly. They had to remove two more polyps (we won’t know if they are adenomas until the pathology comes back) and they did the routine biopsy to monitor my Celiac disease but the doctor did note that there was some liquid still retained in my stomach during the procedure so I am not sure what that means. I should be receiving my follow up information and biopsy results any time now so I will keep you updated!

Hopefully between the tests and visits with my doctors, we will be able to get a better handle on my health and things will fall back into place. I am ready to get back into a routine, not only with blogging but with life in general. I cannot believe that Abby’s last day of school is next week and I will no longer have a kindergartener! The year has flown by so fast but we are ready for some summer fun!

Thank you guys so much for sticking around and for all of your support! You have no idea how much it means and how it keeps me going!

My Battle Cry (& Giveaway!): Speaking Out For Endometriosis Awareness

Blogging For Endometriosis

 

I cannot believe that Blogging For Endometriosis Awareness 2015 campaign is over! The month blew by! I hope you have enjoyed the posts of this year’s campaign and I most definitely invite you to mark your calendars for next year’s campaign! I am really hoping to make a monthly Blogging for Endometriosis linkup so I will keep you updated with the details!

This week’s theme is: My Battle Cry: what message are you determined share with every breath that is within you to make sure the world knows the truth about endometriosis?

As I have mentioned, I love, love, love Skillet (my next tattoo will definitely be Skillet inspired). We are a total panhead family! Their song “Sick Of It” inspired this year’s theme and their song “Battle Cry” inspired this week’s theme!

You’re on the edge of giving up
You know I feel it too
You won’t be alone because
I’m with you
Bring the fire, bring the smoke, bring the rain
We will bend but we will never break

I cannot put into words how important it is to find a support community after being diagnosed with endometriosis or any chronic illness. I was lucky enough to find GirlTalk, which was a support group for ladies with endometriosis that were under 25. That group of ladies saved me in many ways. I loved that I was able to serve as the program director for several years. It is so important to know that you are not alone and have a group of people that can support you during the tough times.

It seems like no one knows
How you’ve been feeling
You’re hiding all your hopes
You stopped believing
It’s not over, we’re one step away
We will bend but we will never break

One of the other messages I want to be heard is to make your voice heard. Chronic illness is a big deal and not nearly enough is being done to correct the problem but together we can raise our voices to make a change. Together we can choose hope and make a difference.

I believe we can’t lose
Even mountains will move
It’s my faith, it’s my life
This is our battle cry
They can’t take us down
If we stand our ground
If we live, if we die
We will shout out our battle cry

Two messages that I will speak until my dying breath are 1) God’s grace and love will change your life and with it everything is possible; and 2) Endometriosis and other invisible illnesses are serious problems and more needs to be done to find long-term treatments. Education and awareness are extremely important and together we can shout our battle cry and fight for change!

Let it rise like a prayer in the night
Shout for love, shout for hope
Let them hear us

Together we can make a difference and share the love, hope, and passion in our hearts with the world!

What is your battle cry?

 

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It is time for the final giveaway! Congratulations to last week’s winners Cheryl, Shelley, and Nikki! You should have received an email from me so let me know if you did not receive it!

This week’s giveaway is sponsored by Seaview Jewellery and FJJ Creations! Today’s giveaway will also have 3 winners! The prizes are a beautiful endometriosis awareness keychain created by FJJ Creations and a beautiful necklace and charm both created by Seaview Jewellery! Just like last week, be sure to click over at Diane’s blog for more opportunities to win awesome prizes from Seaview Jewellery, FJJ Creations and Tabetha’s Creations!

Blogging For Endometriosis Giveaway

This week’s giveaway will run until Saturday, April 4th and 3 winners will be chosen!

To enter:

1) Leave a comment telling me about your battle cry.What message are you determined share with every breath that is within you to make sure the world knows the truth about endometriosis (or another issue important to you)? (mandatory)

2) Tweet about this post and giveaway and then leave me a 2nd comment letting me know you did & include the link to your tweet!

 

I hope your week is off to a fantastic start! Remember to take a stand this week because we’re sick of this!