bloggingchronic illness

Blogging For Endometriosis – One Year Later

It is so hard to believe another year has gone by and we are celebrating our FOURTH Blogging for Endometriosis Awareness campaign! Virtual high fives all around for those who have been a part of all 4 campaigns!

Blogging for Endometriosis - One Year Later


This year has been one heck of a year. There have been some awesome moments getting to watch my daughter start kindergarten and watch her grow and shine through her first season of cheerleading.

There have been some really high moments but there have also been a lot of low moments. Like really low moments. If you would have ever told me before that I would cut myself as a way to ease the pain and anxiety, I would have told you you were insane. Absolutely no way. Now that that has happened, I would much prefer a hug versus an “I Told You” so. There were many times I fell to my knees weeping. The song, “The Last Night” has never been more personal.

This past year I may have lost my footing and my faith may have been shaken but the worst part of this past year was feeling like I had lost my voice.

So many times I felt like I have been been in a crowded room and screaming at the top of my lungs but no one hears me. It has been difficult because I have felt at moments that even my most supportive doctors have stopped listening because they don’t know what else to do.

I have been diagnosed for 11 years and we have tried everything under the sun. Surgeries including a total hysterectomy, Lupron (the level), hormones, experimental treatments, herbs/oil, physical therapy and chiropractic therapy. Nothing has provided long lasting results.

I’m not saying that they don’t care anymore but I feel like they just don’t know what else to say or what to do. The response I get most of the time is that I am “too high risk.” Because of my history of obstructions, I know that makes this difficult but at some point the benefits have to outweigh the risks, right?

The one thing that this past year has taught me more than ever is the need to become your own best advocate. You know your body more than anyone else. If you know something is wrong, then keeping fighting. Keeping pushing for answers even if it means second, third, or fourth opinions. Do not keep silent. Stand up for your health and let your voice be heard.

While the goal of Blogging for Endometriosis includes spreading awareness and education to those outside of the endo community, we know that it just as important to take care of our own and let them know that they are supported, they are heard, and they are loved.

We are a team and we will fight as a team! I love you all & we got this as long as we have each other!


Blogging For Endometriosis

bloggingchronic illness

A Little Bit About Me

I am super excited to once again be participating in this year’s Health Activist Writer’s Month Challenge sponsored by WeGo Health! Raising awareness and education about chronic illness is a driving force behind this blog so when I get the chance to team up with other activists, I jump on it! The goal of HAWMC is to help activists share information, support, and ideas within the online community. It is not to late if you would like to get involved! You can visit the WeGo Health HAWMC page for more information!

If you are a first time visitor to A New Kind of Normal, welcome! My name is Jamee and I am 31 years old! I have been a chronic illness warrior for almost ten years. I have earned my battle scars from endometriosis, fibromyalgia, Celiac disease, gastroparesis, and adhesion issues. I am also an infertility veteran but a very proud mama through the miracle of adoption. I am also a very proud YPW (youth pastor’s wife). I am a pro at surgery recovery but am very new at the idea of disability. This week marks my first week at home on extended (most likely permanent) medical leave. HAWMC falls at the perfect time to provide both inspiration and distraction as I try to discover my “new normal.”

I started this blog in 2007 as an outlet while we were in the depths of fertility treatments. I never imagined that anyone would actually ever read it or that I would discover the incredible online support community. I have been so blessed by getting to know my readers, other bloggers, and others in the online community.  The goal of this blog is to provide awareness and education but also support and encouragement. Chronic illness may now be a part of our lives but it does not have to define us nor does it have to steal our joy and our hope! We are more than our illness! Our concept of “normal” may have to change after a diagnosis but we can still live with purpose and fulfillment!

Feel free to poke around and explore! You can check out my About Me page for more information or My Journey page that shares posts covering my journey with chronic illness! I would absolutely love to hear from you so you can feel free to find me on twitter, facebook, or drop me an email!

Be sure to stop by the Blogging for Endometriosis Awareness Wrap Up post & enter to win an EndoFemm hot/cold pack!



Disclosure: What Is Off-Limits

I’ve been blogging for over five years now and one of my goals with this blog has been to maintain a certain level of transparency about my life with chronic illness, infertility, and adoption – the good, the bad, and the ugly. I try to keep the atmosphere positive and encouraging but I also want to be real about tough topics as well.

However, there are some things that I am dedicated to being off-limits when it comes to blogging:

1- My Marriage. Obviously I am very open to discussing how chronic illness and infertility impact marriage and my husband has even guest posted and I think it is an extremely important topic to talk about as the impact of illness and infertility on marriage is huge and the divorce rate is high and we need to be aware of that. However, this will not be a place where I come to air my dirty laundry or bad-mouth my husband. The details of our marriage are private and out of respect for my husband I plan to keep it that way. For example, I will continue to write about how illness affects marriage and relationships, with the support of my husband, but I will not write about the specifics within our marriage (such as detailing our conflicts, etc). The same rule goes for other family relationships.

2- Abby’s BirthMom. I could talk to you about adoption all day long and the crazy, hard, beautiful journey that it is. I will gladly talk about the benefits about open adoption and what it means for us as we have an open adoption with Abby’s birthmom but I will not share details about her specifically, such as why she chose to place or her history, as it is not my story to share. There are certain details about the adoption that we have not even shared with our families as they are her story and a part of Abby’s story that we do not feel like we have the right to share.

These are the two big ones but I think there is always that search for balance when it  comes to blogging, especially when you focus on personal topics such as health and infertility, so I do believe you really need to be aware of boundaries and find what is comfortable for you and your family.

If you are a blogger, what do you consider off-limits?