chronic illness

Game On: Taking Living Boldly to Heart

 

Living Boldly With Chronic Illness When The Going Gets Tough

If you don’t follow me on social media (which by the way – why aren’t you, hmmm?), I spent most of last night at the ER. I have been dealing with the “usual” – abdominal pain, nausea, vomiting, etc. I had had an appointment at my endometriosis doctor, Dr H, and had felt so weak, nauseated, and in so much pain, she sent me straight to the ER. Of course, as you know, the doctor you get at the ER is the luck of the draw. You can get lucky (like I did at my last visit in November) but this time I wasn’t so lucky. I ended up with one of “those” doctors that automatically walked in with a chip on his shoulder. He was in the room no more than five minutes and never laying a hand on me and the only treatment I received was Benadryl (seriously?!). I did finally receive some Zofran after dry heaving for who knows how long and the fact that they could not get any blood from me because I was so dry until I had a liter of fluids in me. I have the massive bruises and poke marks to prove it. I know when your scans and your blood work comes back normal their hands are tied regardless of how hellish you feel so they have to send you on your way.

Needless to say, I was PISSED when I left. Not the most ladylike term but I was. Let’s not get into how angry my husband was.

There was good that came out of the whole ordeal.

I am tired of taking all of this laying down and waiting for some doctor to have a break through and find a way to not exact heal me, but find a way to at least make life more liveable.

Today, I am taking it into my own hands. I am taking my own advice to LIVE BOLDLY. For months it has sat as the tagline to my blog title. I am ready to make it more. I am ready to take the phrase: live boldly to heart. I am ready to grab the bull by the horns and get on this. I am FURIOUS in all sense of the word.

I was determined to get out of the house today. My husband and I finally bought a car (we have been a one car family for quite some time waiting on disability to finally roll through) and I am SO thrilled. Its not brand new or super fancy by the worlds standards but for me, it is absolutely perfect. Something I have always, always wanted was a moon roof and this has one! We were actually looking at other models on the lot and the salesman pointed out this one and after a false start on the test drive (we’ve never driven a car with a sports mode), we were sold and now its ours! YAY!

There is so much to be said for taking “Live Boldly” to heart. I am actually working with my favorite jewelry designer ever, Jenjer over at FJJ Creations, to come up with a necklace that says “Live Boldly” and I can’t wait to see what she has to come up with.

I am just so excited. I am full of energy (maybe not so good at almost 1am) but I am feel so revitalized, invigorated, and just ready to take on the world. There are some awesome things that can come out of being furious.

I hope you are are all ready to join me on this wild ride of living boldly with chronic illness that I am about to embark on! GAME ON!

 

 

chronic illnessmarriage

Chronic Illness and Marriage

Last week, my husband and I celebrated seven years of marriage! I would love to say they were seven years of bliss but we have definitely had our share of challenges since we exchanged vows!

Our seven years of marriage have included four surgeries, countless doctors appointments, 30 cycles trying to get pregnant, four rounds of fertility treatments, one loss, and two failed placements during our adoption journey.

However, we have so much else to be thankful for! We have an amazing daughter who is the most amazing gift we could have ever been given. We have amazing families and an incredible church family that gives us so much support. We have become homeowners and are enjoying turning our house into a home. We have had the opportunities to take several trips including one special one to see The Mouse.

Over the years, chronic illness has definitely made a huge impact on our marriage. I’ve wrestled with guilt and shame feeling like chronic illness was not allowing me to be the wife I wanted to be or the wife that I felt like my husband deserved. My husband has struggled with frustration and feeling helpless to make my pain lessen.

As we hit the seven year mark, I thought it would be the perfect time to feature a series on the impact that chronic illness can have on a marriage and some suggestions on things we can all do to overcome some of the challenges. Because we are not experts by any stretch of the imagination so I have some guests that will be sharing posts this week as well! I am really looking forward to it and hope it helps you as much as it is helping me!

 

chronic illness

Sharing Our Spoons Kickoff!

The day is finally here to kick off the new Sharing Our Spoons campaign! You may have read some of the background on the Sharing Our Spoons page but in case you missed it, the idea for this campaign came to me after I noticed just how important the online community has been for fighting my illnesses as well as for health/weight-loss. I wanted to see what would happen if we combined the two and after getting come feedback, Sharing Our Spoons was born!

“Sharing Our Spoons” will be a weekly link-up where you are able to find support and encouragement to focus on your entire health. Not just physical but all of you. For this link-up you will be able to choose holistic goals to help you achieve optimal health. The five goals include:

  1. Physical: could be weight loss or exercise related or it could be goals like eating more veggies or cutting soda
  2. Mental/Emotional: take a day to be alone, write a letter, paint, etc
  3. Spiritual: start a new devotional book, commit a certain amount of time a day for prayer/meditation
  4. Something fun: Take time to treat yourself – maybe a pedicure or Starbucks (if you don’t typically splurge for specialty coffee)
  5. BONUS: One thing to get you out of your comfort zone a week – try something new, sign up for a class you maybe have been putting off.

Get your thinking caps on to select what your first set of goals will be & you can share next week for our first official link-up!

In the meantime, add your blog url to the link up list so we can pay each other a visit this week!