chronic illnessinfertility

Identity Crisis: Defining My Womanhood

I vividly remember sitting in the waiting room of the doctor’s office near campus.  My boyfriend (who is now my husband) sat in the chair next to me flipping through a dated Time magazine.  I hoped that I was going to leave with a prescription for what I was hoping was a kidney infection yet in the back of my mind swirled deeper fears – what if I can’t become a mother?

My name was called and I went back to an exam room making a pit stop to pee in a cup to check for infection.  I anxiously waited sitting on the edge of the exam table.  The minutes seemed to last for hours as I stared at the floor (why don’t they ever keep magazines IN the exam rooms?).  Finally the doctor made an appearance.  “Good news,” she says, “you do not have a kidney or a bladder infection!”  Crap.  Either of those would be easy to fix.

She began asking for more information about my pain.  When it started.  Where it hurt the worst.  Any other symptoms.  The whole 20 questions.  She had my lie down and began to press on my abdomen to look for points of tenderness.  It didn’t take her long before she said the words that would turn out to be life-changing – “I think you have a female problem.  I am going to refer you to see an ob/gyn right away.”

I was 21 at the time.  Not sexually active.  Five hours from home.  Only a few weeks into my final semester of college where I was doing student teaching at a local elementary school teaching music.  This was an appointment that I wasn’t hoping to make for awhile.  Thankfully, they were able to get me in quickly and God had pre-ordained for me to have a wonderful doctor who would prove to be an absolute Godsend in the years to follow.

Within three weeks, surgery was scheduled to confirm a diagnosis of endometriosis.  At that point, the only thing I knew about endo was that it could cause infertility.  Surgery confirmed what we suspected and the search was on to find answers and pain relief.  Over the next few years, we tried treatment after treatment and birth control pill after birth control pill in search for pain management.  I did a 3 month course of Depot Lupron which I wasn’t sure I would survive (or anyone around me).  Honestly I am shocked that it was during that time that my boyfriend became my fiancé and actually agreed to marry me!  Me + Lupron = not pretty.  My body went through changes that it wasn’t meant to at 22.  I was in a medically-induced state of menopause so I had the night sweats and the hot flashes.  The whole 9.  I felt as far away from womanly as possible.  I did not sign on for a second course of treatment.

In May 2005 the wedding bells rang and thankfully I was able to lose the Lupron weight and squeeze into my perfect wedding gown and walk down the aisle.  Something that John and I always knew was that we wanted kids.  Six months laster we began trying to get pregnant.  The months ticked by.  Pain levels rose.  Then there was a second surgery.  More months ticked by.  We began fertility meds.  Pain levels rose.  Then there was there was a third surgery.  Then there were more invasive fertility treatments.  We were out of luck and out of time.  Pain became more than I could bear.

My body had failed me.  The job that I was created to do (in my mind) I could not perform. Wasn’t God’s first commandment after creating Adam & Eve to “be fruitful and multiply?”  Instead of feeling fruitful, I felt rotted and wasted.  What did that make me?

The weight of that question came crashing down the day of my pre-op for my hysterectomy.  Due to scheduling conflicts I had to go alone.  John really wanted to be there but I thought it would be no big deal.  A vial of blood, a pregnancy test, and a stack of papers to sign.  No biggie.  I was alright until we got to the last form.

It was short and to the point.  It read “I understand that this surgery will make me permanently incapable of bearing children.”  The only other thing on the paper was  a line to sign and date.  It was if the weight of the world was on my shoulders.  My eyes burned as I fought back the tears.  My hand began to tremble as I put the pen to the paper.  I drew my hand back.  I wasn’t sure I could actually go through with it.  The words “permanently incapable” rang in my ears.  I tried my best to shake it off and scribbled my name at the bottom of the page and was given my orders of when and where to arrive for surgery.

I remember laying in the hospital bed the morning of surgery wrapped in my prayer shawl terrified of what was to come.  I was surrounded my family and friends so I was holding it together until the nurse came for me.  I lost it.  I remember clinging to John’s neck begging not to go.  That early May morning, I was losing my womanhood.

I mean, what is it that makes you a woman?  A uterus and a pair of ovaries right?  Isn’t that what we are taught in anatomy?  I would still have boobs, albeit lopsided boobs thanks to fertility treatments and the HRT that followed.  But what else?

I was prepared for the physical pain following surgery (well as much as one can be) but I was not prepared for the emotional and spiritual pain.  In the two years since my surgery, I been on a journey to redefine my womanhood…beyond my anatomy.

I have learned that I can be strong yet graceful.  Determined yet gentle.  Edgy yet feminine.  I have learned that being a woman has more to do with my spirit than with my ovaries (or lack thereof).  For too long I have let my endometriosis define my womanhood.


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12 comments on “Identity Crisis: Defining My Womanhood

  1. audrey @seemamarun says:

    Endometriosis does not have to define you. You are a beautiful, strong, capable woman. You can’t bear children but you can still be a mother. It’s your heart and soul that make you who you are. Not the organs you do or don’t have.

  2. Jamee? I have said it before, but you amaze me. I would LOVE for you to write something for our ImPossible blog if you are interested!

  3. Katie Jones says:

    Oh girl,

    I cannot even imagine how you made it through that day and that surgery. I would have felt the exact same way. 3 months ago my OB/Gyn told me she thinks I may have PCOS and that we may not be able to concieve again. Even though I already have a child, it made me feel like I just wasnt a “woman” anymore. I mean, isnt that what women were supposed to do? Have kids? How could I be complete if I wasnt able to have kids? All of these thoughts were racing through my head…but I think it just takes time to accept it and to accept that God has other plans for us. Hang in there 🙂

    • Jamee says:

      Thanks for your response & understanding! Its like I know in my head that I am still a woman and have had the awesome blessing to be a mother to Abby but its like my heart still aches. Thank goodness for Jeremiah 29:11 & that I can cling to His promise for a hope & future!

  4. Missy says:

    What a wonderfully, powerful post. Not only for those that cannot bear children, but for all women.
    Our anatomy does not define who we are; our heart and our spirit do.

    Stopping by from SITS.

  5. Ginger says:

    wow…this post resonates with me so deeply I really have nothing I can say beyond “wow”.

  6. Parenting a Toddler with Chronic Illness | A New Kind of Normal says:

    […] it has taken me so long to get around to it that I chose a different title (click here to read Part I about being a woman with chronic illness and click here to read part II about being a wife with […]

  7. Julie Weller says:

    Hi Jamee. Thank you do much for sharing your story. I also had a complete hysterectomy. And it completely shook my world. My husband and I had known for awhile that we could not have children. We’d gone through the craziness at the “infertility clinic”. IVF not even effective. In fact, we had already gone through home study and classes were ready for a baby through adoption. So when this intense grief and pain rose up in me when facing my hyst, I was taken back. I think, like you said, it was the end, it was final. Thank you for sharing your story.

    • Jamee says:

      I am glad you were able to relate and be encouraged! Even now that I am blessed to be a mom through adoption, I think people sometimes expect that grief of not experiencing pregnancy to be gone. They don’t realize the loss that is involved. It may not hit me as often but it is definitely still there! So glad there are others that can understand!

  8. […] it does not erase the scars left behind by infertility. In my case, I have a very literal and visible scar from my infertility. There are the still the questions of what it would have been like had we been able to get […]


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