It is so hard to believe another year has gone by and we are celebrating our FOURTH Blogging for Endometriosis Awareness campaign! Virtual high fives all around for those who have been a part of all 4 campaigns!
This year has been one heck of a year. There have been some awesome moments getting to watch my daughter start kindergarten and watch her grow and shine through her first season of cheerleading.
There have been some really high moments but there have also been a lot of low moments. Like really low moments. If you would have ever told me before that I would cut myself as a way to ease the pain and anxiety, I would have told you you were insane. Absolutely no way. Now that that has happened, I would much prefer a hug versus an “I Told You” so. There were many times I fell to my knees weeping. The song, “The Last Night” has never been more personal.
This past year I may have lost my footing and my faith may have been shaken but the worst part of this past year was feeling like I had lost my voice.
So many times I felt like I have been been in a crowded room and screaming at the top of my lungs but no one hears me. It has been difficult because I have felt at moments that even my most supportive doctors have stopped listening because they don’t know what else to do.
I have been diagnosed for 11 years and we have tried everything under the sun. Surgeries including a total hysterectomy, Lupron (the level), hormones, experimental treatments, herbs/oil, physical therapy and chiropractic therapy. Nothing has provided long lasting results.
I’m not saying that they don’t care anymore but I feel like they just don’t know what else to say or what to do. The response I get most of the time is that I am “too high risk.” Because of my history of obstructions, I know that makes this difficult but at some point the benefits have to outweigh the risks, right?
The one thing that this past year has taught me more than ever is the need to become your own best advocate. You know your body more than anyone else. If you know something is wrong, then keeping fighting. Keeping pushing for answers even if it means second, third, or fourth opinions. Do not keep silent. Stand up for your health and let your voice be heard.
While the goal of Blogging for Endometriosis includes spreading awareness and education to those outside of the endo community, we know that it just as important to take care of our own and let them know that they are supported, they are heard, and they are loved.
We are a team and we will fight as a team! I love you all & we got this as long as we have each other!
4 comments on “Blogging For Endometriosis – One Year Later”
Both of my daughters suffer with this. They have tried so many medications and surgeries. I know that many women who suffer also have been victimized so I am sharing my trauma blog address for any one interested. http://healingtakesalifetime.blogspot.com/2015/03/i-have-been-humbled-by-response-and.html
Thank you so much for sharing your story! Your strength and bravery is inspiring!
From one champion to another. God Bless!
Jamee! Did my link ever show up? Putting it here too, just in case: