just for fun

Currently

Current Book(s) >>  I am also done reading Paranormal State by Ryan Buell. I got sucked into the show during my recovery. It has been an interesting read after hearing experiences that my grandmother and close family friends had growing up.

Current Playlist >>   I’ve been bouncing between a playlist of old country favorites like Clay Walker and Little Texas and a Boyz II Men greatest hits album! Talk about taking me back to middle school & high school 🙂

Rockin' My New Hairdo!

my new highlights!

Current Shame-Inducing Guilty Pleasure >>  KinniToos – the gluten-free equivalent of Oreos

Current Color >>  Pink. Going back to my first love!

Current Drink >>  Coke! Still struggling with heavy nausea so Coke is my constant companion!

Current Food >>  Kix. When my system is feeling sketch, it is my current go-to.

Current Favorite Show >>  Bones! After my last hospital discharge I started at the beginning of the series. Thank goodness for Netflix!

Current Wishlist >>  New jeans, t-shirts, and sneakers for fall! I’ve lost weight since my surgery which is a bonus and while I can fit into my “skinny” clothes that I hadn’t been able to wear since before Christmas, my incision and the button placement do not get along so some “in between” clothes would be awesome!

Current Bane(s) of my Existence >>  Not sleeping. I may seriously lose it if I do not get a good night’s sleep soon!

Current Slang or Saying >>  “I’m going to lose it.” See above. It has been a big factor.

Current Outfit >>  When I’m not at work, its all about yoga pants and my Fight Like a Girl hoodie!

Current Excitement >>  I’ve made it half-way through the week of John being out of town (out of the country actually) and I haven’t landed back in the hospital! That’s a big deal!

Current Mood >>  Exhausted but generally happy!

chronic illness

Updates to Sharing Our Spoons

Since I’ve been in and out a lot this summer I have had some time to do some thinking about Sharing Our Spoons. Mainly ways to enhance and broaden the scope.

I still love the concept behind Sharing Our Spoons (SOS) and think its important to continue to set goals and encourage ourselves to take care of ourselves holistically. The only thing I plan to tweak with the SOS Goals check-ins will be changing them from weekly to monthly. I think the weekly check-ins can add unnecessary pressure so I think moving to monthly check-ins will alleviate some of that but still provide motivation to work toward our goals. SOS Goals check-ins will occur the first Tuesday of the month beginning September 4th. If you are new to SOS and would like to join in, you can check out the Sharing Our Spoons tab for more details!

Another feature that will be added to the Sharing Our Spoons series will be biweekly interviews with fellow spoonies! I hope this will provide a platform for others to share their stories, teach us all a little about what they have learned on their journey, and enhance our community. You do not have to be a blogger nor do you need to participate in the monthly SOS Goals check-ins in order to be interviewed! Interviews will be posted the 2nd and 4th Tuesdays of the month starting in September! If you would like to be interviewed and share your story (or you know someone who might), please email me at anewkindofnormal (at) gmail (dot) com and use Sharing Our Spoons Interviews in the subject line!

The last additional feature will be a Sharing Our Spoons Link Love post that will be published on the 3rd Tuesday of the month that will contain links to new medical news or other articles related to chronic illness, favorite blog posts, and some fun links (ahem, pinterest love anyone?)! Feel free to forward me any links that you think would be great additions to the list through email, twitter, or Facebook!

What are your thoughts on the updates?

chronic illness

What Is In Your Flare Survival Kit?

Flare Survival Kit

When I was discharged from the hospital last week, I went into a huge fibro flare. It wasn’t the typical joint pain flare but the hypersensitivity to touch and sound, the feeling of “restless body syndrome,” the muscle aches, the whole shebang. My mom actually laughed as I started pulling out my flare survival kit as here it was the end of July and I was pulling out a hoodie, my heated snuggie, and an ice pack. Its crazy the things that can provide relief in the midst of a flare. Also included in my survival kit are my Acer tablet, Netflix, yoga pants, a word find book, pain meds, and Coke!

So I got to thinking, I wonder what my other spoonie friends have in their survival kits? I asked on Facebook and here are some of the responses I got:

Cheryl said:

my teddy bear…it may sound silly, but sometimes you just need something to squeeze!

CC said:

chocolate, heating pad or heated blanket, Netflix, & a knitting project!

Heather said:

Heating pad, anti-diarrhea pills, a few good books, crackers, & pain pills

Mamie said:

iPad, soft blanket, oversized pants, & pain meds

Life Happens said:

phone, comfy loose-fitting tshirt-style gown (no waistbands or elastics of any kind), pillow (for inbetween my legs), pain pills, dulcolax, bubba keg of ice-water, heating pad, HuluPlus, and comfort-food.

Rebecca said: Fibro flare survival kit for me includes pain pills, a heating pad, some kind of comfort food, a book or two, my bed and my cat.

To Do List for Surviving a Flare

via

What is in your Flare Survival Kit?

 

P.S. Be a spoonie girl scout & check out the Hospital Survival Kit &  Bowel Prep Survival Kit to be prepared for what else life with chronic illness may have in store!