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Regrouping: A Quick Life & Blog Update

A Quick Life & Blog Update

Before I give you a few blog updates, I just wanted to share a quick story I posted on my personal Facebook wall yesterday:

I had an interesting experience of Walmart of all places today. As many of you know, I spend the majority of my day house-bound if not bed-bound. This has been a little better week so today, I was able to leave the house for the second time this week (look out world!). As I was getting ready to check out, I noticed an older lady behind me with her cane in her cart and she just looked tired. I told her to go ahead of me and she just looked so relieved. As she unloaded her cart of TV dinners and various types of juice, she proceeded to tell me that she had finally had someone come over to sit with her husband who has severe Alzheimer’s and dementia but only had a short amount of time. As she unloaded her cart, she said that she was no longer able to cook full meals like she would like because she’s afraid of leaving the stove plugged in as she’s afraid her husband would turn it on and cause damage. She was constantly worried about him running off or getting himself hurt. You could tell that it had been quite some time since she had had any time for herself. It broke my heart. As she was checking out, I overheard her talking to the cashier. She told a little bit of what was going on and how she was so thankful that I had allowed her to go ahead of me in line and how much it helped her. She said there were so few nice and courteous people left in the world any more and how thankful, blessed, and overcome with gratitude she was. All because I let her go in front of me in line at Walmart. My hips were throbbing and I was in so much pain but something in my heart told me that she needed to go before me. Once she told me her story, it took everything I had not to break down. The most simple thing can make the biggest impact in someone else’s day. I’m not sharing this as a pat on the back to me but as a reminder to myself to do it more often. You never know how much a simple act of kindness can change someone’s day (or life).

It was definitely a very powerful and moving experience. One of those types of experiences where you feel like you need to take your shoes off because you are standing on sacred ground. God gave me such a powerful reminder today that life is so much bigger than me and even when I feel like I am drowning in my own problems, there are always people suffering more than I am. My husband came sympathize with her more than I can on the struggles of being a caregiver but before she left the store, I just wanted to chase her down and give her a huge hug. Then I realized she may have thought I was some kind of major creepo. Maybe I should have done it anyway. Sometimes its the most simple things that are the most important.

With that being said, I wanted to post a quick life and blog update. I really want to get back to the roots of A New Kind of Normal. I thought last year was hard but this year has proved to be even worse and I have felt so lost. I felt like I have just wandered in circles. I’ve tried to come back to posting but each time I’ve done so without a plan in mind so in all of my posts, its apparent that I am just wandering in circles and that is SO not what I want for this space. I want A New Kind of Normal to be a place of inspiration, encouragement, support, and most of all empowerment but in order for that to happen, I first need to feel inspired, encouraged, and empowered.

I am going to take the next week and a half off from blogging in order to get myself organized and my content structured so that this blog can go back to being what it was made to be. I am going to be reading, researching, and finally putting all those blogging boards on Pinterest to good use! I am also in the process of renovating our office/guest room/beauty room so I will have a space where I can truly feel inspired so that also has me really excited! There will definitely be a big reveal when everything is ready!

Things here at A New Kind of Normal will kick back up in May. Sharing Our Spoons will be starting up again so May 3rd will be the first post where we can share our goals for the month. Check-ins will take place the first Tuesday of every month as a way that we can support one another to be the healthiest versions of ourselves possible on all fronts. I am also restarting sharing the stories of our fellow spoonie warriors as a part of Sharing Our Spoons which will be featured once a month so if you are interested in being interviewed and sharing your story, please shoot me an email!

My goals are to post four times a week with Tuesdays being directly chronic illness/health related; Wednesdays will be Chronic Style days; Thursdays will be geared more towards home and family life; and Fridays will be focused on faith and emotional health. As you can see, I really want to hone in on this idea of holistic health and taking care of ourselves as a whole. When you are chronically ill, so many times there is always the bulk of focus placed on our physical health when there is so much more to us than that. I want A New Kind of Normal to become a thriving community of the most bold and vivacious spoonies anyone have ever met.

I am excited and already feeling empowered just by writing this post and I am hoping that you understand and that you too will feel excited and empowered about what is coming ahead. While I will not be posting here until the first of May, I can still be found on social media (Instagram, Facebook, and Twitter).

I am now also on Snapchat (@anewjamee) but I am still trying to get that one figured out! If you have any tips on getting the hang of it, please let me know! And friend me:

Snapcode for ANewJamee - Snapchat

 

I hope this post finds you all doing well! In the next few weeks, if there is anything that I can be praying for  you about or helping you with, please let me know! We can become stronger, inspired, and empowered together! I love you all and I truly mean that!

chronic illness

Putting Myself Back Together: My Journey To Becoming Whole Again With Chronic Illness

Putting Myself Back Together: My Journey To Becoming Whole Again

My apologies from being absent from . . . well . . . everywhere. Since my last trip to the hospital, I have struggled. I feel like I have been treading water just to stay afloat. I’ve wanted to move forward but found myself stuck in the same place.

I’m still really struggling health-wise. I’m still losing weight and not able to eat. My rheumatologist is really worried because I’ve lost a lot of muscle. My joints are ok for the time being but my muscles are in rough shape. I am starting back on Savella so hopefully that will help bring my pain down enough to at least being able to do some exercise to bring back some muscle tone. Fingers crossed that I will have as good of luck this time around on Savella as I did before.

I am also in the process of looking for a counselor to work on my anxiety. Before my last trip to the hospital, I lived in fear of another bowel obstruction but now I also worry about having a repeat performance. I got lucky last time with John coming in when he did but what if next time I’m not as lucky? I know that I can’t live like this. Its not good for me and its not good for my family.

I want to feel whole again so instead of focusing on just my physical health, I want to work on my holistic health. Body, mind, and spirit. I am going back to setting goals like we did for Sharing Our Spoons and sharing them monthly. I would love to have some of you join me and we can walk this journey together!

Thank you so much for all of your continued support and encouragement. It means more than words can explain!

chronic illness

Sharing Our Spoons – August

Its time to relaunch Sharing Our Spoons!

Yes, I am totally aware that I am a little late getting this post up. As I shared about coming out of the fog, the treatment I started for my peripheral neuropathy, Cymbalta, ended up being such as difficult to stop. The nurse at my rheumatolgoist office warned me that it would be a challenging transition and oh my goodness. Challenging would be an understatement. We tapered my dosage in hopes of minimizing the symptoms so I cannot imagine what it would be like stopping cold turkey. I was browsing online in trying to gauge whether or not my symptoms were “normal” (when have I ever been normal?) and I discovered multiple sites and blogs solely dedicated to Cymbalta and all of the issues involved with the withdrawal process. It was reassuring knowing that the severity of the symptoms I was experiencing was par for the course but discouraging at the same time knowing how I feel the medication is marketed as a “miracle” treatment now available for fibromyalgia, neuropathy, and chronic pain. The fact that it is a non-narcotic treatment is pushed to the forefront when, I feel, the side effects when ending treatment are not really addressed. Anyways…

:::stepping off soapbox:::

 

As a Sharing Our Spoons refresher, here are the goal guidelines:

  1. Physical: could be weight loss or exercise related or it could be goals like eating more veggies or cutting soda
  2. Mental/Emotional: take a day to be alone, write a letter, paint, etc
  3. Spiritual: start a new devotional book, commit a certain amount of time a day for prayer/meditation
  4. Something fun: Take time to treat yourself – maybe a pedicure or Starbucks (if you don’t typically splurge for specialty coffee)
  5. BONUS: One thing to get you out of your comfort zone a week – try something new, sign up for a class you maybe have been putting off.

Progress linkups will be posted the first Tuesday of every month!

 

Here were my goals for September & the changes I plan to make for August:

  • Physical: Take a 10 minute walk every day. This week my sweet Charlie was diagnosed with arthritis. Her age is not only a factor but her weight is as well so the vet recommended daily walks to help her drop a few pounds and help with the stiffness. We have both been hobbling around so it will be good for the both of us.
  • Mental/Emotional: Get out of the house! I have most definitely shut myself off and the effects of the Cymbalta definitely need not help in the matter so I need to work on getting myself out of the house on a regular basis. I am officially unemployed as of the first of the month as my medical leave with employer was up so the reality of disability is much more evident and my rheumatologist warned me that closing myself off could enhance my fibromyalgia so I need to work on balancing resting when I need to and being active for all aspects of my health.
  • Spiritual: Do nightly devotions with my husband. We not only need the daily one-on-one time the can be difficult to achieve with an active 4 year old but we know how important it is for our relationship to be grounded in our faith. We can only love each other fully by loving God first and being closer to Him allows us to become closer to each other.
  • Something fun: Time to put my Pinterest boards to use! Every week I must take at least one thing that I have pinned and actually do it! Complete revelation yes? Time to cook a new recipe, try a new beauty tutorial, or spruce up some things around the blog! I have actually considered hosting up a weekly linkup called Been There, Pinned That so that we can all share the results. What do you think? Interested?
  • BONUS: Take a step out of your comfort zone.  If you follow me on Instagram, you may have noticed that I have updated my hair in a pretty major way so its time to take some fun pictures to update my social media profiles! I have always wanted purple hair and finally bit the bullet (the silver lining for no longer working in an office). I think planning some pics may be a great way to wrap up all my goals for the month!

What are your goals for the month? You can link up your blog post in the linky below or leave your goals in a comment!