Too Tired to Fight

My heart is broken into a thousand pieces as I write this. I am a part of an endometriosis support group on Facebook where 2000 ladies can come find support, encouragement, and support. Today we gathered together in prayer for one of our sisters who decided she couldn’t live with the pain anymore and attempted to take her own life. She survived but is not in a coma with the prognosis unknown. While I may not have ever met this sister in real life or not even know her name, I know her as we have traveled the same road that binds us together as endo sisters.

 

I grieve for her life as at her young age, she left like it would be better to end her life than to continue to live with the pain. I grieve for her family who are holding her hand praying that she wakes up and wondering what they could have done to prevent this from happening. I grieve for our group of sisters that come from all different parts of the world and from all walks of life to become a family and feel the pain of loss knowing how easy it can be to find yourself in that place where you question whether or not is worth it to press on.

 

What most people don’t realize is that chronic illness is not just a physical challenge. Illness affects all areas of your life from physical to emotional to social to spiritual and if you’ve never faced it you may not know how exhausting it can be to continue fighting.

 

The physical pain can be bad enough on its own and if you couple that with medications that are heavy on the side effects, hit-and-miss treatments, and hearing “there’s nothing we can do” one too many times, it can be hard not to give up the fight.

 

I think the general public may not see the emotional side of an chronic illness the same way they would for a person facing a terminal illness like cancer. Guilt is just one of the emotions that can be tied with illness. You feel guilty for not being the wife/mother (husband/father) that you think your family deserves or that your family would have if you were not sick. You feel guilty that you are not contributing financially the way that you would if you were not sick (or your being sick is a drain on finances). You may be made to feel ashamed of your illness. Maybe you’ve got a family member who doesn’t believe endometriosis is a “real” disease and therefore its all in your head or you are exaggerating the pain. You may be angry or overwhelmed or depressed when you think about your life with chronic illness. The emotional fatigue can be very overwhelming and sometimes might be harder to face than the physical fatigue.

 

Spiritual fatigue also plays a role in your overall health as someone with a chronic illness. You may question where is God in all this. Did God cause you to be sick or was it something you did? Why does these illnesses exist in the first place as they cause so much pain and destruction? I think facing a chronic illness (like many other things in life) can cause a make-or-break time when it come to faith. You can either come to a point where you lean on God’s grace and, even though you may not understand it, you choose to keep on fighting with faith that God will see you through it. Or you can choose to turn away. This spiritual wrestling match can only add to the emotional and physical battles you are already fighting.

 

I mention this not to create a gloomy mood for the holidays but to share a real perspective on the side of chronic illness that is not often discussed. In my eight years with chronic illness, I have gotten to the point where I’ve questioned if the best thing to do was to give up. The pain was too much. There was no promise of relief. I felt like a burden to my family. I didn’t know what else to do. Thankfully through many of my pastoral care classes I learned to become pretty self-aware of these feelings and with the support of my husband and my doctor, I went to counseling. The last two weeks have been very difficult as once I again I feel like we’re in a place with no options and no relief and once again began asking myself the same questions so I requested a referral to see my counselor again last week with the support of my  husband and doctor who helped encourage me to take that step.

 

Maybe you need to be the person in someone’s life to help make that step. Maybe it is your listening ear or words of support and encouragement that help someone see that life is worth living and the battle is worth fighting. Maybe it is you that becomes an advocate for your loved one when he or she is too tired to fight.

 

So if you have a moment, I would ask you to say a prayer for this endo sister and her family. I would also ask you to pray for your friends and loved ones who may be fighting chronic pain and/or chronic illness as the battle is long and hard. I know that the support and encouragement I receive from you, my readers, means so much to me and helps me keep on fighting the fight!

Right Now

I saw this cute little meme floating around the blogosphere and I needed something cute and fun this morning so here goes!

Right now I am:

watching:  Nada. I’m listening to my Christmas playlist though.

eating: just finished up a bowl of  Marshmallow Pebbles

drinking:  Dr. Pepper

wearing:  dark wash trouser jeans, black turtleneck sweater, and flats

avoiding:  checking voicemail. I hate voicemail. With a passion.

feeling:  affirmed. I read a really good article this morning about what it really means to have endometriosis and it definitely gave me some validation after a pretty painful weekend so I feel like I’m ready to fight today!

missing:  my family! This was the first time that all 3 of us kids had been home at the same time in almost a year!

siblings and cousins Christmas gathering

thankful:  for my amazing husband who is incredibly supportive and such an amazing daddy to our baby girl!

our little diverse family

weather:  cold & rainy! Yuck!

praying:  a dear blog friend who just lost her father & is traveling today to be with her family

needing:  a new left hip

thinking: of baking our first batch of Christmas cookies tonight with Abby

loving:  my TENs unit!

Empi TENS unit

 

What are you doing right now?

The Power of a Pet

There is no denying that Charlie is a very important part of my life. She’s been with me since the beginning of my illness and has been a major part in helping me keep my sanity in the midst of it.  She’s been my faithful sidekick on many a road trip. She’s snuggled next to me while I’ve cried.  She’s paced the halls of our home while I’ve been in the hospital. She allowed me to put a party hat on her as a distraction from the pain.  All in all having Charlie in my life has been a major part of therapy for me over the last eight years of illness.

Charlie My Therapy Dog

 

A quote I’ve read recently says, “A dog doesn’t care if you’re rich or poor, big or small, young or old. He doesn’t care if you’re not smart, not popular, not a good joke-teller, not the best athlete, nor the best-looking person. To your dog, you are the greatest, the smartest, the nicest human being who was ever born. You are his friend and protector.” Every single word of it is true.

 

Charlie loves every person in this family but we share a very special bond as she was my dog before we got married. If I am home she follows me wherever I go regardless of the time of day. When I get up in the morning, she lays outside the bathroom door while I get ready. If I have to get up in the middle of the night, she follows. My parents stayed here with Abby during my most recent hospital stay and they said that she was constantly restless and paced the halls until I came home. Once I was home, she relaxed and stayed beside my bed. She is my protector as I am hers.

 

I think there is just something calming about the presence of a pet that can be great therapy. Of course not every pet is cut out to be a therapist. Our other dog Chloe, bless her heart, definitely would not make the cut as a therapy dog. She can be really sweet but there is some annoying little dog breed mixed in with her mutthood that causes her to whine almost constantly and she will absolutely drive you bananas. I love her but holy cow, she is not a calming presence in a flare. Charlie, on the other hand, always seems to just know when I’m hurting. She knows when I need her next to the bed or when I need her head in my lap for snuggles. There have been many days that I have buried my head in her soft fur and just cried. She didn’t move a muscle. She just stayed with me as long as I needed her.

 

I really wish I had known more about dog therapy programs years ago when Charlie was younger and could have went through the training program with her to become a therapy dog which would allow her to visit nursing homes and hospitals to visit patients. She would have been so perfect. She’s very calm, laid back, and gentle – the qualities necessary to be a good therapy dog.

 

If you are considering making a dog a part of your family, here are some benefits of therapy dogs according to Eldercareabc.blog:

  • Calming presence.  We know that petting dogs consistently lowers our blood pressure and calms our heart rates.  If a person is angry, afraid or distressed, a therapy dog can be the best medicine.
  • Pain relief.  Stroking dogs has been shown to release endorphins that have the potential to block pain!
  • Morale booster. Therapy dogs can help patients let go of their problems for a while, make assisted living facilities feel more like home, and bring back happy memories.

Of course these benefits do not just apply to the elderly but any patient facing an acute or chronic illness.

 

My suggestions for finding a perfect companion include researching breeds to find one that fits your family the best. For example, if you are looking for a calming presence a terrier might not be the best breed for you. Also, visit shelters. There are so many loving and amazing pets looking for forever homes. Websites like Petfinder.com are a great way to discover pets available for adoption in your area! Another tip is to think about the age of the dog (or cat) that you want to adopt. Do you want to go through the house-training process and will you have the energy to dedicate to a puppy? If not consider adoption an adult or even senior dog. We adopted Chloe as a puppy and I know that there is no way I would ever adopt another puppy. It suits my situation more to adopt an older dog (often they are already trained, may not be as high energy, etc). There are many things to consider in addition such as things like having space for a pet and being able to afford his or her care (food, vaccines, vet visits, etc).

 

I hope this post has given you some insight on my positive experience in having a pet who has unknowingly become a part of my treatment plan! Do you have a similar story to share? Have you considered adopting a pet?

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