When Faith Is Challenged

At one point I shared about my faith quite frequently on my blog. I looked forward to putting together a post for Friday Words of Faith. I enjoyed sharing about the things I was learning about God through my everyday experiences with illness, motherhood, and life.

 

If you’ve noticed, these posts have been few and far between lately. I don’t feel as though I’ve lost my faith however it has been challenged. About two years ago, I was really wrestling with how to reconcile who God is with the devestation that chronic illness can bring. Is He the cause of my illness or did He simply allow it to happen? I was not brought up in a church that supported asking questions like this so I really had to wrestle. In the end, I decided God was not the source of my suffering, however, I had the choice of how I reacted to my suffering. I could allow it to make me become bitter and angry or I could choose to grow through it and use my experience to give Him honor. It wasn’t an easy journey but I do feel like I came out on the other side a better and stronger person.

 

Fast-forward to the present – I still believe all these things. I really do. However I think there is a part of me that feels abandoned. I feel like I’ve tried so hard to do the right thing. We’ve tried every treatment under the sun. I’ve seen specialist after specialist and the bottom line is that I am still in pain every.single.day. I would say that I feel God has been silent but that would be a lie. The truth is lately I’ve taken very little time to listen. I’ve closed myself off and built my own little secluded island to avoid being honest with how I feel but that needs to end.

 

Honestly, I feel exhausted. It beyond physical fatigue. It is an exhuastion that reached down to my core emotionally, mentally, and spiritually. I feel like I’m running a race with no end in sight. The only words I hear are “I’m sorry. There is nothing else we can do.”

 

Next to the exhaustion, I feel betrayal. I feel like my body has betrayed me in every way possible. I just turned 30 but feel much older. I feel robbed of my music and running, as well as many other things I enjoy, as my body no longer allows me to participate. I feel betrayed in that God would even allow illnesses like this to exist. Why would He allow His people to suffer? Couldn’t He at least give scientists and doctors the knowledge needed to develop a cure? I find myself listing off things in my head that I could accomplish if only I were healthy. I find myself somewhere between grief and despair but sometimes it is only when you acknowledge the darkness that you are able to see the light.

 

It is in this honesty that I find relief and peace. In pouring out my heart, I have created room for God to pour His Spirit in me. I realized that I do not need to know all the answers to feel the peace only He can offer. I once heard someone say, “It may not be well with my circumstances but it is well with my soul.” I just need to lean on Him and He will carry me through it. The road might be rocky and the road might be long but I have a promise that I do not have to travel it alone. It is time for me to come out of hiding and allow myself to be in His presence.

 

One of my favorite songs of all time is called “I Believe in Love” by Barlow Girl. I often call it my “life song” as it truly fits with where I am in life. One of the verses says, “Though I can’t see my story’s ending that doesn’t mean the dark night has no end. Its only here that I find faith and learn to trust the One who writes my days.” So here I am standing in the midst of my own personal chaos choosing to say that I believe.

I Believe In Love Barlow Girl Lyricsvia

I’m Tired.

I am tired of feeling mentally checked out of my weight loss goals. I worked my tail off to lose 40 lbs and here I am sitting 11 pounds over my goal weight & where I was at the start of 2011  (still at 136 for my challenge check-in). I know in my  head what I need to do but I just can’t seem to make myself do it. I get mad at myself and then I get depressed and then I am back in my emotional eating cycle.

 

I am tired of constantly being in pain. I know things are in motion to bring some answers but its not moving quite fast enough. I miss spending time with my husband and my daughter.

 

I am tired of feeling betrayed by my body. I am 29, not 79. I think I could handle my flaws better if I knew there were good memories attached. For example, I could handle a slightly softer middle if I knew that it was the result of a miracle pregnancy but instead its a result of 4 surgeries in 4 1/2 years and menopause at the age of 26. Seeing my scars is a visual reminder of the failure of my body.

 

I am tired of feeling empty in my spirit. I broke down on Monday evening sitting on the counter talking to my husband as I was sharing about feeling betrayed by my body (and feeling awful about my emotional breakdown on a beautiful post by A Belle, A Bean, & A Chicago Dog – sorry Liz!) and it struck me that I think part of my emptiness is feeling betrayed by God. I know in my head that He didn’t betray me nor did He cause my pain or sickness but I feel very alone spiritually.

 

I wish that the answer to my fatigue was sleep but I know its not that simple. While I am not sure what is going to happen next, the only thing I know to do is keep putting one foot in front of the other and cling to His promise that in my future there is hope for prosperity.

Friday Words of Faith – Riley’s Story

Friday Words of Faith – Riley’s Story

I am completely honored to have Tiffany Cox as a guest writer today! I “met” her through the awesome organization, The Fight Like a Girl Club where she first shared her daughter’s story. I was so completely moved that I invited her to share it with you guys. It is truly moving and inspiring. Grab your tissues before reading ahead!

 

If I ever had any doubts about whether God truly existed or if he really heard my cries, those were all erased the day Riley was diagnosed. I witnessed the healing hand of God. Next week we celebrate four years of LIFE with Riley that wasn’t promised to us. I’ve been asked before if this story is made up. Trust me, I WISH! Riley was diagnosed on October 28, 2006 with a rare blood disorder. There is no cure. She had a hemoglobin level of 2.9 and near heart failure. In the past four years, Riley has underwent surgery, chemotherapy, blood transfusions, medications, tests and numerous hospital stays. We’ve been told by doctors that ‘medically speaking’, she shouldn’t be alive. She IS and God has given her one heck of a testimony along the way!

 

I have seen many things in the past four years since Riley’s diagnosis. Most of them have been while walking the road we are on. I have watched my daughter fight to overcome so much, beating the odds, SURVIVING, fighting back from setbacks and complications. She is my inspiration! Being on this journey has been a true test of faith. It’s not always easy to trust when you are afraid. You want so badly to have control of the situation and force the outcome you want.

 

I can still remember every detail of that day. I will be forever haunted by the image of Riley laying in a hospital bed with tubes and machines all around her. I remember the look on the doctors face when he had to tell us that he didn’t think that she would make it through the night and the shock on his face when she did. To this day, I still can’t look him in the eye. I remember the kind words from a chaplin who was sent in our room to ‘prepare’ us for our daughters death. I remember the fear and confusion. I remember being told that if a blood transfusion didn’t begin to work on Riley that there was no hope for survival. I remember the anger. I remember the rocking chair in Riley’s ICU room where I spent many hours watching her sleep and begging God to let me take her place. I remember the empty feeling.

 

Have I questioned God’s purpose? Yes. Have I been angry with God? Yes. But even at the darkest of times when I have felt alone, God has been there. I may not have felt it at the time, but looking back, I know that it was God who got us through the tough times and still gets us through those times today. I went through a period of complete bitterness. I felt that as a Mom, I had let my daughter down. I couldn’t fix the ‘boo boo’ with a kiss or protect her from fear or pain. I had no control of the situation. I questioned God as to why he would allow a child, MY child to go through so much pain and sickness. Instead of praying, I argued. I wouldn’t go around other Mom’s who had ‘healthy’ children. I grew more bitter when other people would boast and brag on how blessed they were. I distanced myself and wrapped myself around the negative, never looking for the ‘good’ in Riley’s situation. To me, nothing good could come out of a situation where my daughter was having to fight for her life. It just didn’t seem fair!

 

But, you know what? Good DID come from Riley’s situation. We have been taught life lessons that can’t be found in text books or taught in a classroom. I have learned to be grateful, truly grateful for the little things. Not a day with her is taken for granted! I get overly emotional on the first day of a new school year because not only is Riley growing up, she’s beginning a new chapter in her life. One that I’ve feared we wouldn’t get to see. I cry each time Riley reaches a new milestone, rather it be losing her first baby tooth, learning her first cheer or getting a new ‘big girl’ haircut. So when I randomly have emotional breakdowns, bare with me :)   I don’t take birthdays very lightly because I know that every year is a gift. God’s gift. God had every right to tell us ‘no’ when we prayed for him not to take Riley. Instead, he has entrusted us to raise her and allowed us to witness HIM through the life of our child. For me, there is no greater honor! Am I overly protective? You better believe it! Do I worry alot? Of course (I’m a Mom) and because we know that just because she may look okay on the outside, doesn’t mean that everything is okay on the inside. We are never guaranteed that tomorrow we won’t be back to where we were four years ago and honestly, it scares me. This disease is rare and we know that she can relapse at any time, but I also know that God knows what’s in store for Riley long before we do.

 

You can ask Riley about angels and she’ll tell you she sees them. I get chill bumps when she describes how beautiful they are in great detail. You can ask Riley where she was when Mom and Dad were at her bedside those first few critical nights in the hospital and she’ll tell you she was being rocked by Jesus in a rocking chair. I wasn’t allowed to hold her, but she was being held. Some may call her (and me) crazy. I believe her with all of my heart. I believe that she has witnessed and seen things that only others can imagine. I know that even though her body isn’t healed completely from disease, that God has helped heal me as a christian, a wife, a mother and so many more can say the same. My daughter has taught me more then I could ever have taught her about life. I believe she has been given insight and wisdom far beyond what some can comprehend. I believe God has a plan for my Riley!

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