Upcoming Attractions


I’m really excited about some things that may be happening in the not-so-distant future and so happy to share them with you!

 

First off, my wonderful designer April from April Showers Blog Designs is going to help me spruce things up around A New Kind of Normal! I’m really excited to freshen up a bit! My design as stayed somewhat the same through the last several years and while I don’t want to completely abandon the current design (such as the colors which fit me perfectly) some change will be a good thing. So here is where I need some opinions from you beautiful readers – Keep the illustration in the header or ditch it? Any other suggestions, such as ways to make the design/layout easier to navigate, are welcomed!

 

The second awesome thing around the bend is Endomteriosis Awareness Month! We have 27 days until the kick-off on March 1st and we are hoping to take the blogosphere by storm! I am working with a couple other lovely bloggers to create a Blogging For Endometriosis Awareness campaign and we would love for you to be a part of it!

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If you would like to take part in the planning process, drop me an email! Otherwise, we will be posting all of the events as awareness month draws closer! We hope to kick off the month by turning social media yellow for Yellow Shirt Day on March 1st! Don’t have a yellow shirt? Sounds like a great opportunity to shop! You can also grab the badge on the sidebar to help spread the word!

Too Tired to Fight

My heart is broken into a thousand pieces as I write this. I am a part of an endometriosis support group on Facebook where 2000 ladies can come find support, encouragement, and support. Today we gathered together in prayer for one of our sisters who decided she couldn’t live with the pain anymore and attempted to take her own life. She survived but is not in a coma with the prognosis unknown. While I may not have ever met this sister in real life or not even know her name, I know her as we have traveled the same road that binds us together as endo sisters.

 

I grieve for her life as at her young age, she left like it would be better to end her life than to continue to live with the pain. I grieve for her family who are holding her hand praying that she wakes up and wondering what they could have done to prevent this from happening. I grieve for our group of sisters that come from all different parts of the world and from all walks of life to become a family and feel the pain of loss knowing how easy it can be to find yourself in that place where you question whether or not is worth it to press on.

 

What most people don’t realize is that chronic illness is not just a physical challenge. Illness affects all areas of your life from physical to emotional to social to spiritual and if you’ve never faced it you may not know how exhausting it can be to continue fighting.

 

The physical pain can be bad enough on its own and if you couple that with medications that are heavy on the side effects, hit-and-miss treatments, and hearing “there’s nothing we can do” one too many times, it can be hard not to give up the fight.

 

I think the general public may not see the emotional side of an chronic illness the same way they would for a person facing a terminal illness like cancer. Guilt is just one of the emotions that can be tied with illness. You feel guilty for not being the wife/mother (husband/father) that you think your family deserves or that your family would have if you were not sick. You feel guilty that you are not contributing financially the way that you would if you were not sick (or your being sick is a drain on finances). You may be made to feel ashamed of your illness. Maybe you’ve got a family member who doesn’t believe endometriosis is a “real” disease and therefore its all in your head or you are exaggerating the pain. You may be angry or overwhelmed or depressed when you think about your life with chronic illness. The emotional fatigue can be very overwhelming and sometimes might be harder to face than the physical fatigue.

 

Spiritual fatigue also plays a role in your overall health as someone with a chronic illness. You may question where is God in all this. Did God cause you to be sick or was it something you did? Why does these illnesses exist in the first place as they cause so much pain and destruction? I think facing a chronic illness (like many other things in life) can cause a make-or-break time when it come to faith. You can either come to a point where you lean on God’s grace and, even though you may not understand it, you choose to keep on fighting with faith that God will see you through it. Or you can choose to turn away. This spiritual wrestling match can only add to the emotional and physical battles you are already fighting.

 

I mention this not to create a gloomy mood for the holidays but to share a real perspective on the side of chronic illness that is not often discussed. In my eight years with chronic illness, I have gotten to the point where I’ve questioned if the best thing to do was to give up. The pain was too much. There was no promise of relief. I felt like a burden to my family. I didn’t know what else to do. Thankfully through many of my pastoral care classes I learned to become pretty self-aware of these feelings and with the support of my husband and my doctor, I went to counseling. The last two weeks have been very difficult as once I again I feel like we’re in a place with no options and no relief and once again began asking myself the same questions so I requested a referral to see my counselor again last week with the support of my  husband and doctor who helped encourage me to take that step.

 

Maybe you need to be the person in someone’s life to help make that step. Maybe it is your listening ear or words of support and encouragement that help someone see that life is worth living and the battle is worth fighting. Maybe it is you that becomes an advocate for your loved one when he or she is too tired to fight.

 

So if you have a moment, I would ask you to say a prayer for this endo sister and her family. I would also ask you to pray for your friends and loved ones who may be fighting chronic pain and/or chronic illness as the battle is long and hard. I know that the support and encouragement I receive from you, my readers, means so much to me and helps me keep on fighting the fight!

Love is the Best Medicine

Lilkidthings

When my husband and I said our vows six and a half years ago, we did not realize that there would be more sickness than health. We also didn’t realize that we would spend our first three anniversaries either recovering from surgery or preparing for one. Chronic illness has definitely challenged our relationship as well as our faith. There are days where one or both of us are frustrated, or even angry, at our situation. We have had to relearn how to communicate. We have also had to relearn how to plan (or unplan) our schedules to accommodate flares.  We have had to relearn how to make intimacy work in our relationship because of pain. We have had to change, relearn, and reevaluate many things in our lives during the last six and a half years but the one thing that has never changed is my husband’s love and support.

 

One of the writing prompts for this week was to write about a situation where you feel loved. Of course it would be natural to say I feel loved every day because I do. Not a day goes by where my husband doesn’t tell me that he loves me or that I am beautiful (I am a really lucky girl, I know!). But there are moments that show his love for me beyond words. Each time he alters his schedule so that he can be sure to go to my doctors’ appointment, I am reminded of his love for me. Each time he speaks up at an appointment to be my advocate, I am reminded of his concern for my well-being. Each time he reminds me that I am more than my illness, I am reminded of his commitment to our marriage.

 

The perfect illustration of this love and concern occurred several weeks ago.  I had been back to work but a couple weeks following my surgery and I was still getting adjusted to my new treatment. I was still dealing with quite a bit of pain and work had been stressful.  I was so tired – physically and mentally – so he planned an evening of relaxation. When I arrived home from work, he had candles lit in our bedroom, the covers turned down, and NCIS in the DVD player. He planned to take Abby out so I could have some quite time. Its the little moments like this that mean the world to me.

 

So this Thanksgiving – and everyday – I am incredibly thankful for my husband who makes me feel so loved and so cherished. We have just celebrated ten years together and I cannot wait for the years to come as I know he will be by my side!

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