Chronic Illness Survival Kits

NHPBM with WeGo Health

The prompt for Day 9 of National Health Blog Post Month included preparing care packages and I have written several posts creating different types of survival kits so I thought I would share them!

1- Bowel Prep Survival Kit – If you ever had to prepare for a colonoscopy, you may want to check out this post! Because of my celiac disease, I have to have yearly EGDs (which are a much easier prep!) but I still have to have routine colonoscopies and I have had to perform bowel preps for surgery so I have survived my share of preps.

2- Surgery Survival Kit – Six surgeries in eight years has turned me into quite an expert so I have gathered some of my favorite items that I recommend to include in creating a care kit if you have a friend or loved one preparing for surgery or is in the hospital!

3- Flare Survival Kit – I asked on Facebook what fellow spoonies included in their “flare survival kits” that made getting through a flare a little more tolerable and this is the list of responses! I definitely got some great ideas of things to keep on hand to allow myself to be a little more comfortable the next time a flare rolls around!

If you had to create a “chronic illness survival kit,” what would you include?

Fresh Start

My marathon of bowel preps is now over. Thank you Jesus! It definitely wasn’t my first rodeo as I’ve definitely known how to survive a bowel prep but being that a colonoscopy wasn’t waiting at the end made it quite different.

I would like to know who gets hired to write the labels for bowel prep kits. My BFF Mamie and I were joking on Twitter about some of the descriptions. This week’s bottle read “sparkling saline laxative” as if using the word “sparkling” would make it easier to drink. Mamie’s favorite was the brand “Go-Litely” which should have been retitled, “Go-all-day-and-all-nightly.” I think the one that really takes the cake are the barium shakes you have to drink before CT scan or upper GI which kindly read, “Pleasantly Flavored.” Whoever the jerk is that wrote that I would LOVE to treat him or her to three or four bottles and see how pleasant they find it.

But I digress.

Lately its been no secret that I haven’t been happy with my body. I busted tail in 2010 to lose close to 40 pounds. I was so proud of myself and definitely felt confident about my body for the first time in a long time.

Then 2011 happened.

It was not a good year. Pain seemed to escalate throughout the year regardless of any type of intervention we tried. Surgery did not even provide relief as we would have hoped and let’s not get started on the megace treatment.

Between the pain, inactivity, and treatments, it kills me to say that all of the weight I lost is now back and its a struggle to not hate myself for it.

So with this week’s cleanse, I’ve decided to make something positive out of it and use this as an opportunity to have a fresh start and start to make better choices about what I put in my body. The timing of the kickoff of Sharing Our Spoons is great as I’m really looking forward to having the accountability and support of some amazing ladies on this journey to regain control of my body or maybe re-lose would be the better way to think.

Either way, I’m ready to go. I just signed up for a six-month meal planning service to help me plan healthy, gluten-free and kid-friendly meals in advance instead of showing up at the house every day after work and having John and I ask each other, “What do you want to do for dinner?’ Menu planning will commence tonight and grocery shopping will take place this weekend to help us get off on the right foot!

I feel super-charged already just putting this all in writing! Who’s with me?

The Love Yourself Challenge

*P.S. The giveaways associated with the Sharing Our Spoons kick-off will run through the weekend & winners will be drawn Monday so be sure to check it out!*