bloggingchronic illness

Blogging For Endometriosis – One Year Later

It is so hard to believe another year has gone by and we are celebrating our FOURTH Blogging for Endometriosis Awareness campaign! Virtual high fives all around for those who have been a part of all 4 campaigns!

Blogging for Endometriosis - One Year Later

 

This year has been one heck of a year. There have been some awesome moments getting to watch my daughter start kindergarten and watch her grow and shine through her first season of cheerleading.

There have been some really high moments but there have also been a lot of low moments. Like really low moments. If you would have ever told me before that I would cut myself as a way to ease the pain and anxiety, I would have told you you were insane. Absolutely no way. Now that that has happened, I would much prefer a hug versus an “I Told You” so. There were many times I fell to my knees weeping. The song, “The Last Night” has never been more personal.

This past year I may have lost my footing and my faith may have been shaken but the worst part of this past year was feeling like I had lost my voice.

So many times I felt like I have been been in a crowded room and screaming at the top of my lungs but no one hears me. It has been difficult because I have felt at moments that even my most supportive doctors have stopped listening because they don’t know what else to do.

I have been diagnosed for 11 years and we have tried everything under the sun. Surgeries including a total hysterectomy, Lupron (the level), hormones, experimental treatments, herbs/oil, physical therapy and chiropractic therapy. Nothing has provided long lasting results.

I’m not saying that they don’t care anymore but I feel like they just don’t know what else to say or what to do. The response I get most of the time is that I am “too high risk.” Because of my history of obstructions, I know that makes this difficult but at some point the benefits have to outweigh the risks, right?

The one thing that this past year has taught me more than ever is the need to become your own best advocate. You know your body more than anyone else. If you know something is wrong, then keeping fighting. Keeping pushing for answers even if it means second, third, or fourth opinions. Do not keep silent. Stand up for your health and let your voice be heard.

While the goal of Blogging for Endometriosis includes spreading awareness and education to those outside of the endo community, we know that it just as important to take care of our own and let them know that they are supported, they are heard, and they are loved.

We are a team and we will fight as a team! I love you all & we got this as long as we have each other!

 

Blogging For Endometriosis

bloggingchronic illness

Wrapping up Blogging for Endometriosis 2013!

Blogging-For-Endo
It is the final day of March and another round of Blogging for Endometriosis Awareness draws to a close! I have felt so amazingly honored to have worked alongside of so many amazing women and read your stories and shared our experiences. I continue to be so thankful to God for allowing so many incredible women to come into my life through this campaign and blogging in general. I would never, ever wish this disease on anyone but I am so thankful that God can give purpose to my pain and allow me to share my story and hopefully offer some encouragement and support to others who are suffering just as I have received so much encouragement and support! So thank you all from the very bottom of my heart!

Thanks again to all of you who have participated and a huge thank you to all of our amazing sponsors! Please be sure to stop by their websites and let them know how much we appreciate them for taking a stand for endometriosis awareness!

bloggingchronic illness

Blogging for Endometriosis: Favorite Tips (Week 4 Link-Up)


Can you seriously believe that it is Week 4 of this year’s Blogging for Endometriosis Awareness campaign?! Its our last full week of festivities and I am so incredibly thankful for each and every one of you that has taken part!

This week’s topic is to share your favorite things/tips/coping tools ¬†that have helped you stay encouraged in spite of illness¬†(suggestions: endo survival kit, advice for newly diagnosed, top 10 most annoying things you can say to someone with endo, etc).

Since A New Kind of Normal has been around a little while (celebrating SIX years this July!), I want to share some of my favorite posts that I have written for the Fight Like a Girl Club about life with endometriosis that will hopefully encourage you wherever you are in your journey:

  1. When the Doctor Says Its Endometriosis
  2. Taming the Endo Monster
  3. The Unspoken Side Effect of Endometriosis
  4. Preparing for Surgery
  5. When a Hysterectomy Isn’t a Cure

 

Hopefully these posts encourage your hearts reading them as much as they did my heart writing them!

What are your favorite tips/tricks/advice for others living with endometriosis?

Please link up your posts for Week 4 of Blogging for Endometriosis using the linky below! After linking up please visit at least the to links in front of you to help spread the love and support!