I mentioned in one of my recent posts about my fibromyalgia flare that seems to have been hanging around since my most recent discharge from the hospital. A lot of the abdominal pain, and even pelvic pain, has largely subsided recently but the constant joint pressure and hypersensitivity have made it difficult to enjoy the new-found freedom from some of my other issues.
I think explaining joint pain to others is pretty routine. Most people are at least familiar with arthritis so drawing a pain parallel between the two seems to end with an understanding nod of acknowledgment from the other party. To say that your entire body feels bruised? That your sheets feel like sandpaper? Or eve crazier – your hair hurts? That’s a different story.
The medical term for this sensitivity to touch is tactile allodynia and in my personal experience, it has become one of my most frustrating symptoms of fibromyalgia. Early in my diagnosis, it only surfaced sparingly yet as time as passed on, it has become a more recent visitor. It has been hanging out since my discharge which would make this my longest flare with this symptom specifically.
I think one of the most frustrating things about it is that I have found little that helps the pain and irritation go away. There are times where the breeze of the fan against my skin feels like a thousand needles. Sometimes the pressure of sitting or laying down feels like my skin is covered in bruises. Other times it seems that my skin is crawling with ants.
The pain and frustration have reduced me to a heap of tears on more than one occasion in the last three weeks. Heat and keeping my skin covered have been the only two things that have seemed to help but given the heat and humidity that accompany summer in the south its not very fun. I have often wondered if could bath in Lidocaine gel in order to ease the symptoms.
Let’s get this conversation started – do you deal with tactile allodynia (with or without the presence of fibromyaliga)? Find support from others in the comments section & be sure to add yours as well!
P.S. Be sure to stop by the follow up post Allodynia: The Pain No One Sees to check out five treatment options that may be able to provide you some relief from your hypersensitivity.