Appointment Update: Call Me Maybe?

“Maybe” was the word of the appointment Tuesday at my gastroenterologist’s office.

Maybe my system is just a little sluggish.

Maybe my gastroparesis has just gotten worse.


Maybe there is in fact another obstruction on the horizon.

The last one scares me the most.

We did several x-rays in the office and they didn’t show an obstruction at that moment but my symptoms combined with my history raised some alarms. Before an obstruction forms, there is often some kinking and unkinking as scar tissue is working its magic so that could be what is causing the variance in symptoms and why nothing could be seen at the time. I had all of the same tests that showed similar results 3 weeks before my emergency surgery.

In effort to give my system a break, I’ve been on clear liquids only the last 48 hours and starting tomorrow I can transition to soft foods for the next week (the delicious gluten-free glazed donuts I ordered that were delivered today will just have to wait unfortunately). The clear liquids seemed to provide some relief from the pain and nausea but if reintroducing even soft foods causes symptoms to return, I am to call immediately. Any sudden increase or intensity of pain means I get my hiney to their ER immediately. She mentioned the two words NG Tube and I’ve been having nightmares ever since.

It really is a waiting game and its a game I am not very good at.

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  • Reply Suzy

    Oh no. I’m definitely hoping and praying for no obstruction.

    February 21, 2013 at 8:34 pm
    • Reply Jamee

      Thank you!! We feeling we are doing as much as we can to delay the onset of an obsturction as well as possible. I think we all feel like it is going to happen sometime but taking the time to shut the system down completely may buy us some more time before the obstruction fully forms.

      February 22, 2013 at 10:33 pm
  • Reply cheryl

    “Maybe” is right up there with one i’m sure you also get “unusual case”

    February 21, 2013 at 10:55 pm
    • Reply Jamee

      Oh yes I get the “unusual case” line all the time! I like to tell my doctors that I am the type of patient that could get your practice on Mystery Diagnosis so they need to be kind! LOL

      February 22, 2013 at 10:34 pm
  • Reply Mai Bateson

    Whatever it is that you’re currently into.. hope it’s not too serious! Be strong for your kids and know that we have God who loves us so much!

    February 22, 2013 at 1:57 am
    • Reply Jamee

      We are currently fearing that scar tissue from the last surgery to remove a total bowel obstruction that was caused by scar tissue from an endo surgery done 8 months prior caused. I have had 6 abdominal surgeries in 8 years and they are coming back to haunt me. I am beyond terrified but I hope this helps get the disability ball rolling a little sooner than we’d hoped!

      February 22, 2013 at 10:51 pm
      • Reply Diane

        I’m praying Jamee. Have you turned in your first application for disability online? Let me know. I’ve been there recently. Finally got approved a year ago after a three year fight.

        February 23, 2013 at 4:37 am
  • Reply Anna Popescu

    Waiting is never easy, especially if what you’re waiting for could possibly contain bad news. You’re in my prayers, Jamee…

    February 22, 2013 at 9:53 am
    • Reply Jamee

      Thank you for your prayers Anna! They really do mean so much to me!

      February 22, 2013 at 10:38 pm
  • Reply Pain Camp (@PainCamp)

    Glad that they didn’t find any obstruction for now. I get high anxiety when I feel my symptoms flaring up or something relative coming back that I thought was gone. Will send a prayer your way.

    February 22, 2013 at 6:59 pm
    • Reply Jamee

      Thank you so much for your prayers! I am definitely more than a little anxious about this one. I had had 5 surgeries previous to this one and while they were major, I still pretty much knew what to expect but not with this one. I think I need to write a post about how much it truly shook up when I considered my “normal’ for months!

      February 22, 2013 at 10:54 pm

    I'd love to hear from you!

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