One of my best gals headed down to Disney with her awesome family for the week and as a fellow spoonie, I had her take notes on how to survive the wonder that is Disney! As you know we are planning a trip ourselves in September so it is great to have some tips while we are planning! Mamie is no stranger to A New Kind of Normal and definitely check out her blog for more pictures!
I just got home from a great week in Orlando, FL at Walt Disney World. I was a little nervous about my first trip as a spoonie. I have Crohn’s disease, rheumatoid arthritis, fibromyalgia, and SVT (rapid heartbeat). The last time I went it was before any of my diagnoses and kids and I was a few years younger. I was worried that I wouldn’t be able to keep up this time. So for any of you out there that are worried like I was, I’m here to let you know that we can conquer Disney.
It seems simple but it’s hard to remind yourself. I wanted to go all day but my husband made us take a break each day around lunchtime. We went back to the hotel, napped or swam and relaxed. Most families take their breaks around 3 or 4. Instead we took ours at 12 then by the late afternoon we were recharged just when everyone else was winding down.
I packed snacks every day, everywhere we went. That way if I need to take medicine or just needed some nourishment I had them with me instead of searching for something and paying the inflated prices. I also packed healthy snacks which helped my stomach. It’s hard to find healthy food in the park. They do offer many gluten free options.
For me heat relaxes me and helps my tired muscles recharge. Each night, and some afternoons I took a warm bath or sat in the heating tub. It helped relax my overworked muscles and be ready for the next day.
4. Have Fun!
Disney World is so magical and so much fun. My rheumatologist gave me the best advice. He said, “Don’t think about going as a girl with a disease. Just go and have a good time with your family.” I did.