Rediscovering Me

The past two months have definitely been a struggle. When I knew that I would be leaving work and would be on medical leave long-term (and pursuing disability) due to chronic illness, I thought that I would just have this huge load lifted off of my shoulders and things would magically fall into place. I wouldn’t be as stressed. I would have more energy. I would have the freedom and passion to write and I would be on my way to fulfilling my dream of writing a book.

I could not have been more wrong.

I knew the fight for disability would be tough, especially SSI. I thought that my private short-term disability would be smooth, my private long-term disability would be a challenge, and SSI would be a battle. Two things surprised me right out of the gate. The good surprise was finding a lawyer who wanted to represent my case right off the bat. The bad surprise was the unexpected pushback from my short-term policy. i have had this policy for many years and have worked with them on many occasions but have never had any type of difficulties. It is so hard to not completely freak out as it is so overwhelming and is obviously a very big deal. The logical part of me wants to curl up in the corner rocking in the fetal position but the other part of me wants to take a deep breath and trust that God is in control. I knew upfront that the decision to pursue disability was a leap of faith. I felt with everything in me that God was leading me to take that step and I still feel like He is leading the way. Is it incredibly scary? Abso-freaking-lutely. All I can do right now is cling to His promises and know that He is in control and He is faithful to provide.

I also had the understanding that medical leave wouldn’t completely alleviate my symptoms but I had expected a quicker adjustment to being at home. I thought that I would definitely notice a relatively immediate decline in the chronic fatigue that I had been experiencing while I was working. I knew that my pain wouldn’t disappear but maybe it would become a little more manageable. What I wasn’t prepared for was a new diagnosis. Earlier in the year I had been experiencing some numbness and tingling in the outer portions of my hands and feet on occasion. Because it was symmetrical, my rheumatologist concluded that it was likely a manifestation of my fibromyalgia. Right before Abby’s birthday, the numbness and tingling had spread to my entire hands and feet and had definitely begun to interfere with my daily life. When I was driving, I constantly felt like I needed to shake my hands and feet awake. I struggled with typing (which was one of the reasons for my time off from blogging last month) and I had issues with my grip opening doors and jars. It was definitely very alarming. After consulting my pain management doctor and my rheumatologist, I was given the diagnosis of peripheral neuropathy and we started treating it with Cymbalta. Thankfully after four weeks of treatment, I have experienced a significant decline in symptoms. Hallelujah! A treatment that works right off the bat! I was due for one of those! It has also had a positive impact on the joint and muscle pain related to my fibromyalgia. Unfortunately, my pelvic pain and nausea have been crippling but you’ve got to focus on the good things in life right?

Then there is the writing. I’m not sure what is going on there. I thought that once I was home full-time that I would be completely uninhibited and that the words would just flow through my fingers. I have had so many things going through my mind but when I sit down to write, I feel like I just stare endlessly at the blinking cursor on the screen. It is like I have a brick wall in my mind. Words cannot express how ready I am for Type A Conference! Only 112 days! I really need some refreshment and revitalization!

I think the main thing with all of these concerns is the struggle to rediscover my identity in this new chapter in life. I’m no longer a working mom. After our trip to the beach in two weeks, Abby will be with a sitter three days a week through the summer so I am looking forward to (but a little nervous) about taking on a more SAHM role. I’ve never done it so I am a little worried about not being able to fill the shoes I have created for myself. I love Pinterest but man can it put some unrealistic expectations about motherhood in your head. Can I get an amen to that?

There have definitely been a lot of changes in my life and I’m sure there are more to come and while I am a little apprehensive, I am also a little excited. It is an opportunity for discovery and growth as a mom and a wife and more importantly as an individual (which I think sometimes we as women tend to overlook). Here is to discovering a new kind of normal!

Pain Can Empower Growth

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May 30th – A Date That Has Redefined My Normal

May 30th has turned out to be a very significant date in my personal journey.

Five years ago, on May 30th, I had a total hysterectomy at the age of 26.

I remember the anxiety of signing paperwork stating that I understood that the  surgery would make me permanently incapable of bearing children and cause me to have to redefine my womanhood. I remember the way my husband held my hand as we walked into the hospital at 5:45am. I remember the way I felt so loved and supported as I had a prayer shawl made by the ladies at church wrapped around me up until the moment surgery began and was placed back around me when I woke up in recovery. I remember the fears that overwhelmed me the moment the nurse said it was time to go. And I remember the look in my husband’s eyes as he held me and kissed me one last time as they took me away.

This surgery was completely life changing. While I don’t think I completely understood just how much it was going to impact me emotionally and spiritually, I had done everything possible in order to feel prepared for what was going to follow. I had done tons of research and had many conversations with my doctors. I joined a forum so that I could talk to others who had completed the surgery or were scheduled. Everything was set up for me to be out of work. I bought cute pajamas and had a bag packed with the necessities for the hospital. We had the house cleaned and set up to help me be more comfortable when I got home. I felt prepared. I like order and structure so it meant a lot to me to plan and feel at least somewhat in control.

One year ago, on May 30th, I felt like I lost all sense of control as I was rocked by emergency surgery.

I remember feeling off when my alarm went off for work. I remember taking Abby to school and praying that I would be able to make it through the day. I remember sitting at my desk knowing that I wouldn’t. I remember crawling into bed two hours later praying that the pain would stop. I remember the moment I realized something was seriously wrong as I laid on my bathroom floor. I remember three amazing women who took shifts staying by my side for the next eight hours in the ER as we waited for answers. I remember the six people it took to start an IV (and praying for large amounts of drugs) and waiting outside the CT room terrified of what they were going to find. I remember a doctor walking into my room in a bow-tie telling me that I was in serious condition and was going to be admitted to the hospital because of a bowel obstruction. Less than 48 hours later he would tell me that I would be in surgery in less than an hour. I remember one of my girls dropping everything to make phone calls and drive to my house to pack me a hospital bag. I remember barely getting through the barium tests and my mom holding my hair back as the severity of my blockage made itself known. I remember the fear I had when I sent John the text letting him know what was about to happen. I remember that being the last thing I remember for the next three days.

The surgery turned my life completely upside down. I had experienced a lot of pain in my life due to endometriosis and my previous surgeries but this was more than words could explain. I was admitted on Friday night at 8pm and surgery on Sunday around 1pm. After sending the text to John, I honestly do not remember anything until Wednesday night. My first memory post-op was of the nurse removing my bandages and seeing my incision for the first time. I instantly began to cry. The seriousness of what I had just experienced became very real. When surgery was performed, a portion of my bowel had already died and gangrene was spreading. Had I not went to the ER when I did, the outcome could have been very different. It was a very scary feeling. My initial hospital stay lasted a week however during recovery I would have two additional partial obstructions (where my bowels were reattached) which would require an additional week hospital stay for each. It was a very difficult time for me and my family. It was a summer of chaos.

Both of these events have a played a big role in shaping who I am. Each required change and a struggle to redefine what normal meant in my life. The hysterectomy was a planned change. We knew it was coming and prepared for it as much as possible. It became the stepping stone  to creating our family through the miracle of adoption which would later bring Abby into our lives. The bowel obstruction surgery completely blind sided us. When John left that Friday with Abby to visit family and officiate a wedding, I would have never imagined that I would have to call him from the hospital. I would never have predicted that the summer would have been so chaotic. I felt like I lost control of every aspect of my life. I was so sick and recovery was so hard. It was hard on me physically, emotionally, and spiritually. It was hard on John, our marriage, and our family. Even recalling how hard the experience was on Abby and recalling the look in her eyes as she looked at me in the hospital bed puts a knot in my stomach. Our normal was thrown out the window, stomped on, and burned and it would take us a lot of time and work to redefine our new normal.

I believe that there are many turning points in people’s lives. Birthdays, graduations, weddings, and births are welcomed celebrations and opportunities for growth. There are other days though and while they may not be as joyous or as welcomed they can still shape you and make you into a better person. May 30th happens to be one of those days.

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Taking Some Time Off

As I mentioned briefly in my turnout post, I’ve been struggling this last little bit. I can tell I’ve been shutting myself down and withdrawing quite a bit even from my family who mean everything to me. I thought the two day breather would help get me back on the horse but I’ve realized that I’m still not quite ready. Some new and somewhat symptoms have shown up this week which in themselves make it difficult to write. I’ve been trying to use braces and/or ice packs but with little relief. I see my pain management Dr tomorrow and I see my rheumatologist on Monday and hopefully he can make some sense out of everything. I am praying that he does as if we continue in this ‘I’m not sure what else we can do for you rut,’ I’m not sure how I’m going to maintain. I feel like I’be just fallen apart in the last week. I’ve had to spend my days almost entirely in bed so while I am glad that I have the option to rest now when I need, I did anticipate feeling well enough to keep the house clean, dinner on the table, and time to play in the yard until it got dark. But I don’t have it. Maybe I will one day. I keep reminding myself that i cannot expect to feel fully restored and suddenly have no pain or fatigue since I am not working but at least some improvement would be nice. I have a dear friend who as made this move herself and she reminded me that it may take up to 3 months before my body begins to feel restored and fully nourished as I had been rinning on empty for too long and now that i have the chance to slow down, it will take awhile to get that back.  It was what I really needed to hear.

Between all of this drama, we have a special event in our family happening this weekend! Abby is turning 4 on Saturday!! Can you believe it? Her party will be the following weekend so we will have family in town so we’ve got quite a bit on our list to be ready for Mermaid birthday bash!

So to save my mental health and to be able to focus more on our family during the events throughout the next week, I will be taking the next week off from writing! I really wanted to finish out the HAWMC with WeGo Health but I gave it a good run and really enjoying participating in it again this year. I just need this next week for myself and my family. I plan on working on some things behind the scenes and I’ll still be around on Twitter and IG as I get all of the party decorations pulled together for her party.  Still feel free to contact me if you need me!

Thank you guys for your continued support and your endless encouragement that you give me each and every day. You all mean so much. Can we just all get close to our screens so we can have a big group hug? Seriously guys, I love you and I will be seeing you in a week! With pictures from all the birthday festivities!

Hugs & pain-free wishes,

P.S. I will post one more time in the morning to announce the winner of the MIRA Stainless Steel BPA-free snack containers tomorrow so be sure that you entered!

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